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Posted by zanzi1, on Fri Mar 08, 2019 4:43 am

Does anyone with an ileostomy have shortness of breath and if you do, do you know the cause and solution

 Also no energy. Thanks

Reply by Cheekymonkey111, on Fri Mar 08, 2019 7:19 am

hi there Zanzi

i have had shortness of breath at times especially when tired or if i have been really pushing myself. im only 4 months post op so im hoping that its just a stamina thing and over time this will improve.

Reply by NewlifeVictoria, on Fri Mar 08, 2019 8:35 am

Hi yes I do have shortness and f breath to idk 😐 

Reply by ron in mich, on Fri Mar 08, 2019 9:10 am
hi all yes I also have that problem but I also have asthma, but since I,ve had resection surgery for my ileo. last year I get tired more easily and shortness of breath.
Reply by Morning glory , on Fri Mar 08, 2019 3:26 pm

Hi zanzi1.

I have had my ileostomy since 1987. I haven’t had shortness of breath due to this. How long has it been since your surgery? It may this and your weakness may be due to  the surgery taking awhile for your body to heal. If so just give your body time. This is however something; that needs to be addressed with your Doctor.

Best wishes,


Reply by Longroad78, on Sun Mar 10, 2019 1:55 pm

I started to have that issue and never gave it much thought because I am working all the time so I normally work through issues which is good and dangerous at the same time. I know about this but never put 2 and 2 together. It is a lack of b-12 which is a vitamin that is water soluble normally absorbed through both your large and small intestines. Found this on the internet (cut and pasteing the info and website for more reading for you'll

Symptoms of vitamin B12 anaemia include:

unexplained fatigue (extreme tiredness) and lethargy (lack of energy)
feeling faint
irregular heartbeats (palpitations)
hearing sounds coming from inside the body rather than from an outside source (tinnitus)
loss of appetite


Hope this helps you all. 

Reply by zanzi1, on Sun Mar 10, 2019 2:41 pm

thank you

I've just had a complete blood workup and aside from somewhat low co2 and creatine issues which are directly related to having an ileostomy I am fortunately healthy as can be. I asked the doctor who I like very much about the co2 and low bicarbonate if this can be causing the shortness of breath and she didn't think so. However, I don't know if I agree with her. Maybe, I'll start taking some B12 and see if there's any change.

thanks again, ann



Reply by Cheekymonkey111, on Sun Mar 10, 2019 3:33 pm

Thanks for the link longroad78 it was very infomative and explained a few of the things i have experienced since my surgery thanks

Reply by looking forward, on Mon Mar 11, 2019 5:13 pm

have to work yp the energy but my back has been hurting since mine was done in dec--know anything about that??

Reply by Marob, on Mon Mar 11, 2019 5:50 pm

Hi Zanzi1, yes I have shortness of breath and tiredness!  I have a high output Ileostomy and don't absorb nutrients from my food!  I dehydrate due to the high output and my kidney function drops which makes me breathless and very tired!  I have to take six sachets of Diarolyte in 500ml of water every day to try and keep function up!  It's a bit of a battle but worth it to keep feeling well! Good luck!

Reply by zanzi1, on Mon Mar 11, 2019 8:52 pm

thank you so much. I'v started drinking Pedialyte. I assume that might be the same as Diarolyte. Hopefully, it will work for me. Stay well. Ann

Reply by Nobagjerz, on Thu Mar 14, 2019 9:41 am

Hi from Baltimore.2014 was the year I hade my surgery today I am still slowly recovering blood vessels still.your body takes six to ten years to recover.i can feel my stomach and groan the last few shortness of breath slowly disappeared after four I try to stay up and moving around all day long. You have to push yourself to keep up and active sow your food gets digest your food down. You look marvelous for how young you take a while for your body to relax and adjust to the new way you do business.confidence is very sexy don’t you think.jerz from Baltimore USA 

Reply by looking forward, on Wed Apr 03, 2019 9:39 pm

no shortness of breath but i am always tired and now i am always hungry because everything comes right out

Reply by zanzi1, on Wed Apr 03, 2019 9:45 pm

Thanks for your response. I didn't know this until a few years ago but people with an ileostomy are prone to kidney stones and also low bicarb rates. I found out because I had kidney stones a few years ago and the urologist told me it's because of the ileo surgery. Hope you feel better.


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