Help with Neonatal Ostomy

Hello, to all the folks here, thank you! Today we managed to keep the last pouch we applied on for just about 24 hours. It's made a huge difference in how we run our cares with him, and it keeps our little dude more relaxed.

We'll keep on iterating and trying to see what else we can do for the little man, but we are really happy. My sincerest thanks to everyone.

Once we get a bit further and lock down a rhythm for our cares, I'll compile our steps somewhere and keep it as a reference for the next set of parents (hopefully it never has to be read).

You're welcome. Your family has its hands full, finding easier/better methods to this madness helps a lot on the stress level of everyone. BTW, you can tear/cut those barrier rings and make them whatever size you need.

Cheers to 24 hours!!! 🎉 High fives, quiet ones so we don't wake up your baby, to you guys! You are becoming pros 😊

Hello! I have been dealing as well with neonatal ostomy. My baby has an ileostomy and had a wound created which led to her using a fistula wound pouch. I think Hollister brand is great, but the one you should get samples from is Eakin pouches. They are best for fistulas as we work closely with an ostomy/wound care nurse to try other bags as she doesn't need these anymore. We have a bunch I plan to give away to people who need them. Anyways, with those bags, we use Cavilon Advanced. You can google these so you can see what they look like, but that's what we used to stick on the bag and stoma powder. If the skin is wet, it will dry it out, and then you put on the Cavilon to create a barrier. After, if the consistency of the output is thick, then your best bet is to cut the bottom part and attach the Dansac Soft Wire Ties Ostomy Bag Closures. If it also helps with the output, put cotton balls in there, at least three since it's a small bag. This helped us so much throughout the process of including her wound in the bag. I hope this helps, please reach out if any questions occur.

Hello! It’s been some time since this post was created; I hope life is easier these days and that your son is thriving. My son was born on 12.01.24 with small bowel atresia and had an ileostomy with stoma & mucous fistula done on 12.02. We are still in NICU and hoping to go home soon for a short while before his reanastomosis in February. The trouble is that even in the hospital with all of the resources and support, nobody can get his bag to stay on more than about 12 hours. They keep trying variations of the same method using the Pouchkins system and it’s driving me insane to watch and participate in. I learned some valuable information on this thread but most of all it’s just nice to know we’re not the only ones! In your last comment, you mentioned putting together a list of steps in his care routine that actually worked. Did you ever create that? Would love to know what ended up working for you guys with your newborn. 

Living with Your Ostomy | Hollister