That's exactly what I use, a mini binder clip. It works just fine.
eefyjig
Aug 18, 2025 3:44 pm
Sue Feldman
Aug 20, 2025 3:39 am
Just use soap and water. I keep them very clean. I use the mini binder clips.
Skee
Aug 20, 2025 6:51 pm
Try Hollister. I use the premier convex. No leaks! You must ensure that you have the two pieces of Velcro properly aligned. Sometimes just a minor shift makes the difference.
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Posted by: ejbetty
Geekyjen,
Thanks for the reply. I will be seeing my doctor on Friday and mention Entyvio. I did not remain paralyzed for more than 2 days, but it was terrible and I was so scared. The doctors just used alot of xanax and other drugs like that to UN paralyze my joints that were being attacked by the remicade. Turns out I have been diagnosed with LUPUS. It is attacking my nervous system. I had ulcerative colitis in 1996 and they had to remove my colon. Had a J pouch for 10 years, until it started failing. I then got a permanent iliosomy, and I suffer from severe chronic diareha, and I dehydrate frequently. I recently had a proctectomy, and that is when the new autoimmune disorder, Lupus, appeared. I have had two hospital stays now because of the blisters and the paralyzing incident. I will be dealing with this forever now. I have just been working on acceptance.
I love this website because of wonderful people like you!
Betty
Sue Feldman
Aug 21, 2025 12:01 am
I use Hollister 2 piece. I have a loop ileostomy, and sometimes they leak because there are two vents. I also think that it depends on your output and how many times a day you have to empty. I had my surgery 15 months ago, and it just leaked one time from the Velcro closure, so that's why I use a mini binder clip. I feel safer that way, and I don't have to worry anymore if it were to happen again because it is messy.
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In addition to your pouching system, you may require the use of an ostomy accessory to enhance the performance of your system.
Learn more about ostomy accessories, and when to use them.
Learn more about ostomy accessories, and when to use them.