Most people I have met always ask how it is to have a bag from the start, which sounds silly. I did not have to make that big change, although I had problems with my kidney and bladder, so I had a catheter bag part-time.
Things are very different in 2020 compared to 1972.
48 years... who else?
Wow........I can't imagine how much my life would have changed if I had this shitbag from early on. Everything from my confidence to my popularity would have been turned upside down........don't even want to go there.............. Yeah, some things are very different now......but unfortunately, some things never change. If you know what I mean. Great post topic!!
Regards,
bob
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Yeah wow, this site helped so much, I mean really who do you know with this infliction? No one, felt so alone and disgusted by myself every turn.
But it ended up being so damn strengthening, I got fucking moving, really only another choice.
That's
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I was damaged by a procedure and ended waking with this, I understand all of you.. perhaps you had to have it, I get it.. doesn't matter either way.
Just wanted to share that
BitDiff,
I could not even imagine having an ostomy as a child. I am sure things were quite difficult growing up. Children can be cruel. Adults are bad enough sometimes! You have my admiration for making it through all that! I am sure the supplies have improved a great deal as well.
It is tough changing from what you know and are comfortable with to the unknown. I have not allowed it to change the way I live, but until I got it all down pat, it was not pretty!
Thanks for the post!
Puppyluv
Colostomy from the start, but catheter bag for bladder and pipes for kidney (part-time)
A few more scars. Somehow still surviving, but alone and giving up all hope.
Now the world is screwed, not just me...
Hi Bitdiff, wow, I thought having my ilio for 35 years was a long time. I would say the world is more screwed than you. You've handled a rough situation all your life, and you're still out and about.
Just found this post, a bit late I know. I had my ileostomy when I was 10 days old, now 43. I was born an 8 lb ish baby, looked healthy! Until feeding, that's when life went from happy to "sorry, your child's very sick!" My parents suffered too; to this day, both of them remember everything, and sometimes I can't believe how they coped. Sadly, it affected my father more than I realized. Funny, you don't notice when you're young. They were both young when I was born, so sad. They were both told to prepare for my death, so I got christened. I got the surgery at 10 days; it's been hard growing up, missed a lot of education, though hospital trips and more surgery. I did get a lovely lady called Mrs. Baker when I started school; she took me to the toilet, etc. You just got to do the best you can. My mum has been amazing through all of my life, been there always, even now I'm older and married.
x