This topic is about the experiences of living with a colostomy from birth compared to receiving one later in life. The person who started the discussion was born with a colostomy in 1972 and has never known life without it. They also faced kidney and bladder issues, requiring the use of catheter bags at times. They reflect on how ostomy care and supplies have changed significantly since the early 1970s and are curious about others who have lived long-term with an ostomy.

- The individual shares that their colostomy has been a lifelong condition, sometimes accompanied by a bladder catheter bag and kidney drainage tubes, which have left additional scars. They express feelings of isolation and a loss of hope, especially given the current state of the world.

- Many people emphasize that the supplies, adhesives, and pouching systems available today are much improved compared to those in the past, making management easier.

- Long-term ostomates, those who have lived with an ostomy for 35 to 48 years, share that it is possible to adapt. They mention that confidence can be rebuilt and an active life can be maintained despite early challenges and social stigma.

- There is a learning curve when it comes to managing an ostomy. It might not be easy at first, but with perseverance and experimenting with different products and routines, one can achieve reliable wear time and encounter fewer problems.

- Emotional support is crucial. Growing up with an ostomy can be difficult, especially when faced with insensitive comments from others. Seeking supportive relationships and community can help combat feelings of loneliness.

- The impact on family is also significant. Parents and caregivers may experience stress, so maintaining open communication and appreciating their support can help strengthen family bonds.