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Frequent leaks

Posted by eikoop99, on Sat Jun 06, 2020 7:48 pm

I have had an ileostomy for just over 40 years.  I really had no issues for a long time, other than a hernia about 20 years ago. The last few years I have been having trouble with leaks, blow outs etc.  Has gotten much worse each year and now I can rarely go even 24 hours without changing my pouch.  My new normal seems to be twice a day or more.  I know I have another hernia which is part of the issue, and hope to see a doctor when covid eases up a bit.  Another issue is my stoma has shrunk and the opening is now almost skin level, plus my skin has really become uneven around the stoma.  I really don't know what to do.  Have tried other appliances, but nothing seems to work any better than what I am using.  My stoma sits very low on my right side.  Anyone been through a similar situation?  What did you do? I've wondered if I need to have the stoma completely redone and start over.  Any advice would be appreciated.  Thanks!

Reply by Maried, on Sat Jun 06, 2020 8:03 pm

Do you use Eakin or Hollister seals? These help a lot in stopping leakage.

Reply by Cplumber, on Sat Jun 06, 2020 8:06 pm

Try using Eakin seal to help even things out. And wearing a ostomy belt 24 hours a day helps me. You can Seattle ostomy belts on Amazon and see different types. 

good luck I will be praying for you

Chris

 

Reply by lovely, on Sat Jun 06, 2020 8:12 pm

Hi eikoop99, sorry you are having so much trouble. Have you talked to your supplier they usually have a stoma nurse that can give some advice and send different samples. I hope you can get some help and There will probally be some suggestions from some other members. Good luck and stay safe.

Reply by Padfoot, on Sat Jun 06, 2020 8:57 pm

What kind of flange are you using? If your stoma is skin level and uneven, I would suggest a convex flange and a belt. If that works, you may be able to ease off on the belt (I used to wear one, but I don't anymore). Coloplast now makes a line of product specifically for hernias; you might want to call them and ask for some samples. But I would start with a convex flange. Good luck.

Laurie

Reply by Morning glory , on Sat Jun 06, 2020 11:20 pm

Hi, I have to agree with Padfoot on this. I was in the same situation a few years ago and had to change to a convex flange. It made all the difference. Good luck.

Reply by eikoop99, on Sun Jun 07, 2020 9:38 pm
Maried wrote:

Do you use Eakin or Hollister seals? These help a lot in stopping leakage.

I occasionally use Eakin seals, but most of the time they are too thick when my stoma has shrunk back.

Reply by eikoop99, on Sun Jun 07, 2020 9:41 pm
Padfoot wrote:

What kind of flange are you using? If your stoma is skin level and uneven, I would suggest a convex flange and a belt. If that works, you may be able to ease off on the belt (I used to wear one, but I don't anymore). Coloplast now makes a line of product specifically for hernias; you might want to call them and ask for some samples. But I would start with a convex flange. Good luck.

Laurie


I currently use Activelife pouches with stomahesive.  Will check on the Coloplast hernia products though, thanks!

Reply by NurseWithAnOstomy, on Sun Jun 07, 2020 11:52 pm

Everyone has given great pouching ideas! I am interested...is your stoma mostly skin level or retracted? 

Reply by Mark1070, on Mon Jun 08, 2020 11:57 am

All good advice above.  I would add the following: Try a supplemental adhesive like Skin-Tac and/or Torbot [latex (if not allergic)] bonding cement.  You might also want to tape around the edges of the flange with Leukotape.  Check to make sure the peristomal skin is not weeping, as can be the case with yeast infections or other skin issues.  Check for creases in the skin when you sit as these can pull the adhesive away from the skin.  It also sounds like you'll need a WOCN to measure your stoma again to get a better fit as you may have effluent pancaking under the flange. Hope these help! 

Reply by Xerxes, on Tue Jun 09, 2020 11:35 pm

You probably know this, but it is very important to remove any residual adhesive when changing the flange. Use unisolve to remove the adhesive and make sure to wipe it dry. Then apply skin prep and karaya powder around the stoma before placing on the new flange.

 

Xerxes

Reply by pgcto, on Wed Jun 10, 2020 2:07 pm
Cplumber wrote:

Try using Eakin seal to help even things out. And wearing a ostomy belt 24 hours a day helps me. You can Seattle ostomy belts on Amazon and see different types. 

good luck I will be praying for you

Chris

 


I found Eakin seal a bit heavy and thick.  I've used the much thinner Sure Seal™ Ring and found it to be good insurance against blow outs.  I find I can use a belt much less, and wear days are extended.

Reply by Daanders, on Wed Jun 10, 2020 8:35 pm

I have had irration. Apparently I have had a reaction to eakon, changed to silicone seals

EAM
Reply by EAM, on Sat Jun 13, 2020 8:54 pm
Daanders wrote:

I have had irration. Apparently I have had a reaction to eakon, changed to silicone seals


Hi I just requested some of the Silicone seal rings to try out, you find they are helpful? how many days do you get with one.

Thanks

Eric

Reply by Daanders, on Sun Jun 14, 2020 10:32 am

I just started first time 3 days. Second time one day

EAM
Reply by EAM, on Sun Jun 14, 2020 4:09 pm

Thanks for the info! 

Reply by eikoop99, on Tue Jun 23, 2020 7:35 am
NurseWithAnOstomy wrote:

Everyone has given great pouching ideas! I am interested...is your stoma mostly skin level or retracted? 


The opening is skin level.

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