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Small vent but also help me?

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Thu May 13, 2021 11:47 pm

Okay so this last thirty days I've gone through my supplies rapidly for some strange reason. My output is either so liquidity that it seeps through the wax barrier ring or it's almost solid to where it pushes the wax ring and the phalange part up slightly causing a leak. I've had a fairly healthy diet since coming home from the hospital and physical rehab but there's no in between some days and I'm just frustrated. Especially since rn I'm not using my desired ostomy supplies (holister). I'm sadly having to use the tester coloplast single ones that I received from the physical rehab but they hardly last a day cuz they don't wish to stick really. Even if I apply adhesive remover, clean the area really well and prep my skin. Each time one pops off during the night when I sleep and makes a large mess and destroys my sensitive skin because of the barrier extenders I have to use on it or it won't stick at all and slight damage from the coloplast it's self. I only have two left and I sadly don't get my supplies until this Monday, the 17th. The only place I can get my supplies is an hour and a half away (it's a darling little pharmacy that specializes in this stuff) because no where else except in the big city like Omaha has my supplies but I dont wish to waste most of my day going back and forth between home and Omaha. I'd contact my wound nurse/doc but sadly they won't be able to get me the supplies I need since it's not common in my town for ostomy stuff, that explains the long travel. Am I stressing too much? 



Last edited by PugLover22 on Fri May 14, 2021 3:59 pm; edited 3 times in total
Fri May 14, 2021 12:14 am

call hollister request demose colo place all so  on lineostomy suppys an look call  thezz placesare good for sinding thing out please look in to paset beareywe stripps out round ask this componys when u call them they like whening u over new componey find o wounded care nurse from your sugeryis besthelp take caregood luck. hopes this helps u

Fri May 14, 2021 1:06 am

   Hi puglover,

As had been said Google ostomy supplies get the numbers for Hollister, Coloplast and others and order free samples.

In the meantime call your wound care nurse/ doctor and get what you can now. These may be inferior but can get you by in a pinch. 

The biggest thing I recommend when changing your bag is use adhesive remover (if you have it) and make sure the area is cleaned with water (like a couple of damp paper towels), then pat dry and air dry then apply your bag. Make sure when cutting your hole it's maybe 1-2 mm larger than your stoma. (Cut the hole previously while you are prepping your skin keep the bag under your armpit to warm it up before applying). Then finally apply the bag over your stoma gently making sure it goes on evenly then hold pressure over all adhesive area to better guarantee it sticks well. 

I only mention all this as being helpful. 

Is your tummy (area) around your stoma generally flat? Mine sinks in under the stoma so I cut the wax barrier ring into and pull it to shape, stick under my stoma before applying the bag. (Just to cover all bases). And I use a convex shaped bag (around stoma) because the uneven skin shape under my stoma. 

I hope that helps in some way.  ..mtnman. 

 

Axl
Fri May 14, 2021 3:53 am

Hiya pug

Like the others have said get straight back into the facility where your stoma nurse/doctors/wound care or whatever they are called over there, there is no need for you to suffer. You need help and are entitled to it, don't be backward about going forward, get in there and get the assistance you need.

Axl

 

 

Fri May 14, 2021 7:14 am

Hi Puglover,

As suggested, free samples are available and would get to you probably more quickly than anything else.  Regarding the leakage:  I have found that I get a much better seal if I do NOT use the wax ring.  It's different for everyone, but you might want to try that once.  It is VERY important that the area is clean and there is no adhesive left behind.  I use a coloplast sen sura mio.  I shower daily without the bag, but I realize that most people don't do this because insurance restrictions won't pay for us to have clean underware every day, instead we're supposed to go two or three days in the same S*** filled bags.  The cost of bags (for me 148. extra every month) is prohibitive for most folks and so we don't change every day.  Write your congressman--but that's another issue.

I don't know what you're dealing with, colostomy or ileostomy and the supplies are a bit different.  I have an ileostomy.  I use only a barrier wipe and then my mio and I have very few issues.  I don't need adhesive remover because I don't use a seal.  Keeping the area clean before re applying your barrier wipe and then the bag will give you the best results.  I'll private message you my deets and I can send you a couple of mios, if you would like.  There's nothing worse than being totally out of necessary supplies.

PEACE

Dadnabbit

Fri May 14, 2021 3:06 pm

If you call some of the vendors like Hollister, Coloplast  and tell them the problems you are having they can help you. Best wishes and stay safe

Fri May 14, 2021 4:21 pm

Yes, ask the vendors to over night them! They will! 
i would send you some too but by the time they got there, it would be next week anyway. Never get short of supplies. I know you are a short timer so stockpiling a bunch of sullies is crazy but do create a stash! It will come in handy and you can pass them on when you no longer need them.  Cannot imagine not having all that I need. My output is different day to day as well but you may want to try a two piece pouch system and a convex pouch. It sticks out a little better to allow the output to get out and down in the pouch verses sticking and pushing your barrier up for a nice leak. 
Using a lubricant In your pouch will help it as well. K Y jelly, baby oil. Don't use anything that would hurt your stoma.

Keep us posted! Good luck!

Puppy

Fri May 14, 2021 7:14 pm

Hi puglover,

  Nah, if you didn't stress.........you wouldn't be a true ostomate!!  We've all been there.  It does get VERY frustrating, and depending on your situation can be down right nerve-racking!!  And when you get low on supplies it can be down panic!!  There's just not much around the house that you can use to replace an ostomy barrier and bag........trust me, I've looked.  

  So..........when someone says their output is seeping under the ring......or pushes the ring up (if output is solid), I have to ask what direction does your stoma point?  Is it straight ahead or to one side?  The other question is how tall is your stoma........meaning is it flush with your skin or raised a bit above it?  If it's close to the skin and not sticking out much......you need a convex barrier, which presses the skin around the stoma down....to help stop what you describe.  But when yu add a barrier ring to any barrier, even convex, it raises the barrier that much from your skin's surface........so if your stoma is pointing sideways it may not be a good situation.  They make a scoop-like device that helps redirect sideways traveling output forward into your bag.  So.........are you using a convex barrier? With your barrier ring?........or is your stoma long enough that you use a regular flat barrier? 

  Now adhesion is a different animal.  Do you wear an ostomy belt?  That's highly recommended!!  When you say it pops off when you sleep.......can you explain that in a little more detail?  You're not trying to sleep on your stoma..........right?  You sleep on your back or side.........right?  So why would it not adhere at night, but stick during the day..........what's changing? 

 

;0)

bob 

Fri May 14, 2021 8:08 pm
w30bob wrote:

Hi puglover,

  Nah, if you didn't stress.........you wouldn't be a true ostomate!!  We've all been there.  It does get VERY frustrating, and depending on your situation can be down right nerve-racking!!  And when you get low on supplies it can be down panic!!  There's just not much around the house that you can use to replace an ostomy barrier and bag........trust me, I've looked.  

  So..........when someone says their output is seeping under the ring......or pushes the ring up (if output is solid), I have to ask what direction does your stoma point?  Is it straight ahead or to one side?  The other question is how tall is your stoma........meaning is it flush with your skin or raised a bit above it?  If it's close to the skin and not sticking out much......you need a convex barrier, which presses the skin around the stoma down....to help stop what you describe.  But when yu add a barrier ring to any barrier, even convex, it raises the barrier that much from your skin's surface........so if your stoma is pointing sideways it may not be a good situation.  They make a scoop-like device that helps redirect sideways traveling output forward into your bag.  So.........are you using a convex barrier? With your barrier ring?........or is your stoma long enough that you use a regular flat barrier? 

  Now adhesion is a different animal.  Do you wear an ostomy belt?  That's highly recommended!!  When you say it pops off when you sleep.......can you explain that in a little more detail?  You're not trying to sleep on your stoma..........right?  You sleep on your back or side.........right?  So why would it not adhere at night, but stick during the day..........what's changing? 

 

;0)

bob 

 

 

----------

Thank you bob. 
My stoma actually isn't risen at all, it sits right at the same height of my skin, it's kind of like a little dimple in my skin that my stoma sits in. my stoma is weirdly pointed upwards toward my face instead of to the side like most. And the coloplast tester that I'm using is a convex shape which I'm not a fan of because there's easier leaks I've noticed. It doesn't push the skin down at all. It stays slightly risen along with the ridges which is why I believe it doesn't wish to stick especially in the crease of where my belly button used to be, then it works it's way down with coming undone. But I had never had this issue with my usual ostomy supplies. I sleep on my side or slightly tilted to my side with a pillow behind my back (because I still have an open wound in my midsection on where they operated on me to make the stoma and I have a fear of anything getting into my wound and I hate the process of putting fresh gauze into the wound cuz it messes with my brain somehow.)

PugLover 



Fri May 14, 2021 11:14 pm

dear make sure your belt is snapping back in place  if the nose of the snap  starts diging in to skin piont it out away from skin try with belt titenn belt bukel as a mans blue jenses belt  shoud  stop it going down the one u have is it 2 inch wide  i have heard think amuzion has one 3-4 inch wide out of pokit.no werelels  elss go back see your wound care nusre for help there tea. make shere u are using paset your baily like mine weak on the ostomy side. my big muoth here all so look in to bing 36 by 36 or 40 by 40 a bed mate put under u for pe miss happs one times or mutie times used are avalublee i thank this may help u sleep. mined at ezzzz.  i think sams clubs may have phrmuce area.  u are tied of me.take care good luck.

Sat May 15, 2021 8:38 am
Mtnman wrote:

   Hi puglover,

As had been said Google ostomy supplies get the numbers for Hollister, Coloplast and others and order free samples.

In the meantime call your wound care nurse/ doctor and get what you can now. These may be inferior but can get you by in a pinch. 

The biggest thing I recommend when changing your bag is use adhesive remover (if you have it) and make sure the area is cleaned with water (like a couple of damp paper towels), then pat dry and air dry then apply your bag. Make sure when cutting your hole it's maybe 1-2 mm larger than your stoma. (Cut the hole previously while you are prepping your skin keep the bag under your armpit to warm it up before applying). Then finally apply the bag over your stoma gently making sure it goes on evenly then hold pressure over all adhesive area to better guarantee it sticks well. 

I only mention all this as being helpful. 

Is your tummy (area) around your stoma generally flat? Mine sinks in under the stoma so I cut the wax barrier ring into and pull it to shape, stick under my stoma before applying the bag. (Just to cover all bases). And I use a convex shaped bag (around stoma) because the uneven skin shape under my stoma. 

I hope that helps in some way.  ..mtnman. 

 

when i tape on your it takes me away from spotbiy headed to connct with u .////// i dont like want i need to state  u have seen talk to wound nurses  doctors u i  we at the start we have weak balilys nowon as a inney   u are prbuly looking at changing  ostomy sids when level or sinks ten times harded 2 get that sealsupper hared .. the wound care nurse have trouble with this.  are u having3 water sorees all in 3 inch area. i my need time to pull from are cives./brain  we all need hard for all a day in 3-4 areas for ostomy show tell./    [that durty word is sugery] if u have 2 thing going on probley wont happen. quieyt offion  we educate supply ers no needs./// will try to get back to u take care good luke 

Sat May 15, 2021 11:31 am
c57557555 wrote:

when i tape on your it takes me away from spotbiy headed to connct with u .////// i dont like want i need to state  u have seen talk to wound nurses  doctors u i  we at the start we have weak balilys nowon as a inney   u are prbuly looking at changing  ostomy sids when level or sinks ten times harded 2 get that sealsupper hared .. the wound care nurse have trouble with this.  are u having3 water sorees all in 3 inch area. i my need time to pull from are cives./brain  we all need hard for all a day in 3-4 areas for ostomy show tell./    [that durty word is sugery] if u have 2 thing going on probley wont happen. quieyt offion  we educate supply ers no needs./// will try to get back to u take care good luke 



Sat May 15, 2021 11:44 am

my bag around stomu i point to my right best for me for drainage i have fat thiths uperlegs baliey so ate times my dranage tub get pinched nut dranaging for some of use that us night bag 24 7 the bag tub tweist no drainage  at home dopot theres  ties cotedthat will rape aroundbotom of bag tub to keep it strait may shound keep from tweisting24 -7ties are 4 inch to 18 pluss try 8-10

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