MY POSTING HAS BEEN OFF due to brief illness and two days hospitalized for dehydration, but I’m home and fine now. I got the usual blast of bureaucratic absurdities while in the hospital, many of them hilarious. My arrival in ER, after the usual wait, began with an EKG. Not only did it show my heart was fine, but the operator said “That’s the prettiest picture I’ve seen in quite a while.” Notwithstanding that, they installed a heart monitor on me, a clumsy, pain in the patoot to have to live with each time you walk from the bed to the bathroom. I wasn’t able to get a straight answer about it but deduced it was because I was 78. It added to the difficulty of emptying my pouch, along with the IV tubing, and the emptying was constant due to the IV itself. I waited in a chair in ER for 12 1/2 hours before they had a room for me. Once upstairs, the needle pokes commenced. Because my veins are not conducive to blood draws, and the techs would have to poke me over and over again before getting blood, my left arm is black and blue from the elbow to the wrist. One blood tech showed up at 2:30 AM, woke me up, and announced her presence and purpose. I asked to go to the bathroom first. When I came out, she was gone and never returned. Later that morning, a nurse asked me about it. I told her what happened. She said that the tech claimed I “left and never came back.” Did she think I was hiding in the bathroom? I was in there only as long as it took to empty, clean, & close. Another nurse was Jamaican and spoke with such a thick accent, I couldn’t understand a word she said. She’d ask me something, I glance at my wife, she’d interpret, and I’d respond. Later in the evening, she said that she’d look in on me several times during the night to check on me. “Why?” I asked. “To see if you’re still breathing,” she said. On one of those visits, after she’d listened to my chest, she said (I thought), “I need to scan your leg.” “Scan my leg?” I croaked, incredulous. It turned out she needed to scan the bar code on … my tag. Happy to be home.
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Geekyjen,
Thanks for the reply. I will be seeing my doctor on Friday and mention Entyvio. I did not remain paralyzed for more than 2 days, but it was terrible and I was so scared. The doctors just used alot of xanax and other drugs like that to UN paralyze my joints that were being attacked by the remicade. Turns out I have been diagnosed with LUPUS. It is attacking my nervous system. I had ulcerative colitis in 1996 and they had to remove my colon. Had a J pouch for 10 years, until it started failing. I then got a permanent iliosomy, and I suffer from severe chronic diareha, and I dehydrate frequently. I recently had a proctectomy, and that is when the new autoimmune disorder, Lupus, appeared. I have had two hospital stays now because of the blisters and the paralyzing incident. I will be dealing with this forever now. I have just been working on acceptance.
I love this website because of wonderful people like you!
Betty
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