Hello all, I hope to talk more socially later. I just joined and have a problem, maybe another person has it too. I am Carol, my sidekick or tummy kick is A.K.A Stella, and at times A.K.A Stella Fire Queen from Hell. She has me raw. My question and also some venting too... I have a primary care doctor. For the past 2 1/2 years, I am now in palliative care. They offered it to me, explaining it is an extra layer of care, like that extra blanket. I am a 67-year-old gal, had lung cancer 5 years ago, cured to my knowledge. Presently, I have severe COPD, use oxygen 24/7, had a botched hip surgery, used some screws from Lowe's I think, and a lot of pain in my lungs, ribs, ileostomy, stomach, and my upper back feels like bees stinging me and I don't get any honey for my pain. I have been on hydrocodone 7.5 ml, 325 aspirin for 3 years and 5 months. I take it every 6 hours. I have always complied with the doctor's rules and only get what she prescribes. Now she will not fill it any longer, stating in the toxicology tests I do monthly, I tested zero twice for that drug to be in my system. I do not know why. I had emergency surgery, woke up a month later with an ileostomy. I was told I was a 15th case not expected to live. I went to rehab for 3 months, learned to walk and use my hands again. Then, I will be darned, I was home less than a month, broke my hip, back to rehab. Learned to walk again for 3 months. Well, that's my "what happened to me" story. I have chronic pain. I do my best most days for quality of life. For me, to think of quantity is useless. I am a long-winded gal. Does anyone else get zero the same as me with toxicology tests for pain meds? My GI system is very fast since ileostomy. I can't take time-release meds. They come out whole in my bag. I have had constant diarrhea for 3 years and 5 months. No meds she gives me help. I feel very ill and in a lot of pain physically and emotionally. I have terrible vomiting and severe diarrhea. I told my NP that today. He works with that doctor. I feel she has broken my trust, and the first words defined in palliative care are to attend to the patient's pain. Okay, I am done talking about it. I read all your stories, every sadness and every laughter. It does say we are still kicking, and I shake my head yes at times when I read who you are in the stories. Some I have been there, and some I applaud you for having the courage to face what you must. Be careful out there. If anyone coughs on you, shake your finger at them and get outta there. Sincerely, Carol.b

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Your stoma care nurse can be a valuable resource when you need help.
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