Hello all, I hope to talk more socially later. I just joined and have a problem, maybe another user has too. I am Carol, my sidekick or tummy kick is A.K.A Stella and at times A.K.A Stella Fire Queen from hell. She has 🔥 me raw. My question and also some venting too...I have a primary care Dr. For the past 2 1/2 years, I am now in palliative care. They offered it to me, explaining it is an extra layer of care like that extra blanket. I am a 67-year-old gal, had lung cancer 5 years ago cured to my knowledge, present time I have severe COPD, use oxygen 24/7, an ileostomy from botched hip surgery using some screws from Lowe's, I think, and a lot of pain in lungs, ribs, ileostomy, stomach, and my upper back feels like bees stinging me, and I don't get any honey for my pain. I have been on hydrocodone 7.5 ml, 325 aspirin for 3 years 5 months. I take it every 6 hours. I have always complied with Dr. rules and only get what she prescribes. Now she will not fill it any longer, stating in the toxicology tests I do monthly, I tested zero twice for that drug to be in my system. I do not know why. I had emergency surgery, woke up a month later with an ileostomy. I was told I was a 15% case not expected to live. I went to rehab for 3 months, learned to walk and use my hands again. Then I will be darned, I was home less than a month, broke my hip, back to rehab. Learned to walk again for 3 months. Well, that's my "what happened to me" story. I have chronic pain. I do my best most days for quality of life. For me to think of quantity is useless. I am a long-winded gal. Does anyone else get zero the same as me with toxicology tests for pain meds? My GI system is very fast since ileostomy. I can't take time-release meds. They come out whole in my bag. I have had constant diarrhea for 3 years 5 months. No meds she gives me helps. I feel very ill and in a lot of pain physically and emotionally. I have terrible vomiting and severe diarrhea. I told my NP that today he works with that Dr. I feel she has broken my trust, and the first words defined in palliative care are to attend to the patient's pain. Ok, I am done talking about it. I read all your stories, every sadness, and every laughter does say we are still kicking, and I shake my head yes at times when I read who you are in the stories. Some I have been there, and some I applaud you for having the courage to face what you must. Be careful out there. Anyone coughs on you, shake your finger at them, and get outta there. Sincerely, Carol.b
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