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Medical PTSD

Fri Oct 29, 2021 1:23 pm
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I have both a urostomy and a colostomy as the result of a total pelvic exenteration for cancer. Unfortunately the surgery wasn't totally successful and I have now started immunotherapy for the cancer that remains. Has anyone else dealt with medical PTSD? I had a rough hospital experience and I am extremely fearful about having to return to the hospital for any reason in the future.

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Fri Oct 29, 2021 2:36 pm

Yes.  I count myself among a number of folks on this site who have been down that road.  I can't offer any real or individualized solution for you, but I can tell you that the awfulness of PTSD following major, life-changing surgery is something that many of us have grappled with and conquered to one extent or another.  After all, we're still here, living with what was once our new reality and now, years on, our own ongoing normal.  Hospitals and doctors are negative experiences that we'd all like to avoid forever, but life's not that simple, is it?  I've been back a couple of times and, each time, I find that I numb myself up to the prospect of the dehumanizing aspects of it and crawl into myself as long as necessary to get through it.  There is a hard core inside each of us that we need to rely on to get us through these things.  You've got it too.  Lean on it and you'll be alright.  Stay well.   HenryM

Fri Oct 29, 2021 2:45 pm

ILong .... Henry is right . Most of us have been there . Just trust in your doctors and hospitals. At least they caught it ,then fix you and move on . I've spend 1/3rd of my life I'll and in hospitals, but I'm perfectly perfect now . 
Just hang in there and lean on us . 
Get well is worth the smile , Ritz

Fri Oct 29, 2021 7:11 pm

Hi there

I hve terrible medical ptsd from a long ICU stay. I am also struggling with triggers and flashbacks.  I feel you. Sometimes it is so realistic that I can smell it.


Fri Oct 29, 2021 8:01 pm

c57557555 wrote:

did u have thisdone ate a small hospitl./ if so if ate all posubele go to a larger one for some one more skilled  check around on docters

My procedure was done at the University of Pennsylvania hospital. Very skilled doctors just some complications and a very long hospital stay

Fri Oct 29, 2021 9:49 pm

uh what?

Sat Oct 30, 2021 2:46 am

If dread of hospitals, and waiting rooms, and operating theatres and the time spent there is called medical PTSD then I do have it. My own immature way to shed those feelings was to not think about them and get involved in distractions, but that backfired, now I am on a steadier course. Sound advice from Henry, all of us have to find our own way to overcome this malaise and you will too with time. Best wishes.

Mon Nov 01, 2021 3:45 am

As others have mentioned a lot of people on here have or have had PTSD and come out the other side. It maybe worth looking into some councilling? Also speak to friends, family and us as much as you can tell help deal with it. Xx

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