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Happy Thanksgiving 🦃 and Healthy Eating

Thu Nov 25, 2021 3:18 pm
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Hi all, it's been a bit! Well happy thanksgiving! I just had a little  bit of dinner for the first time in 2 years! I am alone this year thanks to COVID and some family members not vaccinated.

so I am coming up on my one year cancer free! My surgery was Dec 15, 2020, and I underwent 5 months of chemo first so last thanksgiving I was way to sick too eat. Now I just got my labs back and for the very first time all my numbers are in the green except B12(now taking injections) and my GRF is 35. 
I was diagnosed with CKD after my Urostomy ☹️ And was a stage 4. With healthy eating and exercise I got myself up to a 3B!

with that said I did cook a Turkey, a low sodium stuffing, and all the crap that one would eat. Boy...I cannot eat much at all! My whole pattern has changed with eating.

I was wondering if anyone else has been diagnosed with chronic kidney disease after chemo and cancer like I was... and how you are dealing with eating with a Urostomy? I think it bothers me more due to the parastomal hernia around my stoma.

but I am thankful to be alive right now... I've lost 6 friends to cancer... all in their 50s. This past year. It's been a trying time. So

i am extremely grateful 🦃🙏🦃🙏🦃

( sorry this sounds all over the place, I'm on a cellphone..cannot see)🤷🏼‍♀️

These are the top 5 issues ostomates face:

1. Dating and relationships
2. Concealing the pouch
3. Foods to eat and avoid
4. Losing or gaining weight
5. Pouch ballooning

Check out this video from MeetAnOstoMate.
Thu Nov 25, 2021 4:22 pm

Congratulations on the one year cancer free diagnosis! It's been 20 year for me....I don't even give it a thought anymore 👍

Thu Nov 25, 2021 6:49 pm

Congratulations.

Fri Nov 26, 2021 1:39 am

Congratulations 🎊 good to hear your turning the corner. Keep kicking ass. XX

Axl
Fri Nov 26, 2021 3:37 am

Congratulations and best wishes to you.

Axl

Fri Nov 26, 2021 7:43 am

Congratulations and continued healing. I just got the all clear on my 2nd Anniversary from bladder cancer. I have to see a Urologist regarding my kidney numbers, so I may be reaching out to you with questions. If that's ok 🙂

 

Sat Nov 27, 2021 9:46 pm

Congratulations, stay well and enjoy life.

Sun Nov 28, 2021 3:06 pm

Congratulations! Celebrating 12 years this month with an Illeal Conduit from Bladder Cancer. Ask your Nephrologist about Jardiance, started this 2 months ago and A1C / GFR / Creatine numbers are good plus it has lessened some Afib symptoms. All the best,  PS: I have dual Citizenship so I get 2 Thanksgivings!

Sun Nov 28, 2021 3:13 pm


Bryce wrote:

Congratulations! Celebrating 12 years this month with an Illeal Conduit from Bladder Cancer. Ask your Nephrologist about Jardiance, started this 2 months ago and A1C / GFR / Creatine numbers are good plus it has lessened some Afib symptoms. All the best,  PS: I have dual Citizenship so I get 2 Thanksgivings!

Hello! 
Jardiance? for Kidney Disease? Huh... I thought this for diabetics. I do not have that... and congratulations on 12 years! I hope this feeling of taking it one day at a time wears off a bit to already one week at a time!

thanks!🙏

Mon Nov 29, 2021 3:15 pm


mikamouse wrote:

Hello! 
Jardiance? for Kidney Disease? Huh... I thought this for diabetics. I do not have that... and congratulations on 12 years! I hope this feeling of taking it one day at a time wears off a bit to already one week at a time!

thanks!🙏

Hi,

After the Bladder Cancer Operation the Urologist suggested establishing a relationship with a Nephrologist as the 'kidney tubes' run directly to the stoma and this can lead to kidney infection. Have also been pre-diabetic for 10 years with an A1C averaging 6.8. GFR / Creatine numbers have not changed in 10 years but they are still slightly out of whack so Kidney Doctor put me on Jardiance. An unintended positive side-effect was that Jardiance has caused less shortness of breath caused by Afib. Had the Cardiologist do an ECG, the Afib is still there, he can't explain why the symtoms are improved but is pleased they are. Two other patients with my Family Doctor have also been put on Jardiance by their Cardiologists and experienced similar results. Bottom line is that at some point an Ileal Conduit / Urostomy is going to cause some Kidney issues and this is just a head's-up that Jardiance may be helpful with a side benefit of helping heart issues if you have them.

The one day at a time feeling will definitely will morph into a week, then two weeks, then a month at a time. Your profile presents well, so you will have lots of support on this site and that, plus a positive mental attitude should see you well on your way to feeling better.

Best,

Bryce 

 

Mon Nov 29, 2021 3:31 pm

Hi Mikamouse.  Belated Happy Thanksgiving, congratulations and thanks for sharing.  You might've gone all over the place but it's all the places most of us need to go.  Waiting for your next trip.

Respectfully,

Mike

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