Early this morning, I rolled over in bed and crushed my sore knacker against the mattress. Holy snappin' duckshit, that woke me up real quick. So I am now bombed out on Oxycontin, Endone, and Panadeine. The pain is easing somewhat, but I'm feeling that nice little trip coming on.
Anyway, my employer rang me yesterday asking how I was. I told them where I was at and that it would be 2 - 3 weeks before I could really get back to work. They were quite okay with it. I find that amazing in this day and age where an employer actually cares about an employee. Anyway, I told them I had some reports I needed to take in for some shifts I had done, and they told me that's fine, we'll sit and have a coffee. Not bad, eh?
Next month is going to be a busy month with doctors. Urologist, cardiologist, endocrinologist, and my gastro bloke. I am just concerned about my stoma; it seems since I have been suffering these last 2 and a bit weeks that my coughing has prolapsed it about another 2 cm. So now it curves downward and sticks out about 3 cm, so in total, it's about 6 cm long. Well, let's see if we can get another opinion from a different surgeon. I don't think I can wait for my surgery any more than necessary.
On the upside to all this, I'm slowly on the mend and, even though in pain, I do feel better in myself.
Thanks, everyone, for the well wishes and encouragement. We have a great bunch of folks here. Hugs to all (manly hugs for the blokes). Love you all.
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And yes - kudos to your boss/work. Sounds like they realize they have a good guy and would like to keep him.
Had a random thought the other day ... aren't we lucky to live in the time of pain medications
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. Sure they can be abused and some have not so nice side effects ... but where would we be without them.
Hugs (not manly ) to you!
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Geekyjen,
Thanks for the reply. I will be seeing my doctor on Friday and mention Entyvio. I did not remain paralyzed for more than 2 days, but it was terrible and I was so scared. The doctors just used alot of xanax and other drugs like that to UN paralyze my joints that were being attacked by the remicade. Turns out I have been diagnosed with LUPUS. It is attacking my nervous system. I had ulcerative colitis in 1996 and they had to remove my colon. Had a J pouch for 10 years, until it started failing. I then got a permanent iliosomy, and I suffer from severe chronic diareha, and I dehydrate frequently. I recently had a proctectomy, and that is when the new autoimmune disorder, Lupus, appeared. I have had two hospital stays now because of the blisters and the paralyzing incident. I will be dealing with this forever now. I have just been working on acceptance.
I love this website because of wonderful people like you!
Betty
So glad you're feeling a little better, still worried about you though.
Big hug and squeeze (not too tight, don't want to hurt you).
Tine
xx
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Wishing you well, my friend, it's a good thing you have the evidence or the doctors would think you're nuts, LOL Ed
Hope you feel well enough to have a chuckle.
Well, I've gone downhill since this morning. Can't stop sweating, feeling cold all the time, the pain is unbearable, and the pain meds don't touch it. Guess I'll have to keep suffering till it's all healed up.
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Getting Support in the Ostomy Community with LeeAnne Hayden | Hollister
Gus, if it's still getting worse and the pain meds aren't touching it, it's time to go back and have it reviewed - maybe the antibiotic isn't right?
There should be no need for you to be in that sort of pain in this day and age, mate.
Please go back and have it looked at?
Your very concerned Rachey xxxxx
Agree with Ed. Sometimes the docs have to be 'reminded' that things are going through us ileos faster. My migraine pain meds by mouth aren't doing what they did before.
Rach is right - you shouldn't be in pain like that. We wouldn't allow our pets to be in that kind of pain... come on, docs!!
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Pain control by injection might be the only way...?
Hey Gus
Sorry you are in so much pain. Ask your doctor if you can take hydromorphone; it's a morphine derivative. It did wonders for me while I was going through cancer. Feel better, buddy.
Not to change the topic ... kind of on topic - pain.
How many people fear acute agonizing pain almost more (or more) than death?
With my op and other acute pain I've had ... I realize that it can reduce me to jelly really fast. Yet, when things got dicey at the hosp, I knew that I wasn't really fearful of death (knew that about myself before but that confirmed it). But pain - I don't want it.
Shall I start another thread on this?
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When I was coming round after my first ileostomy, I was in so much pain, I wanted to die so the pain would stop. I couldn't even scream. They knew I was in pain; they sent for an acute pain nurse. Now I am terrified of having surgery. I blame the anesthetist; he was there, he should have stopped the pain. Whenever I have surgery now, everyone has to swear they won't let me wake up in pain. I have had about 15 surgeries since then, and so far it hasn't happened again.