| michaelm700 wrote:
Tthanks so much for your post!
Our cases do seem really similar, so the perspective is priceless!
I too have to take tons of laxatives or get a cement mixer. So, I know exactly ...
Hi Michael, A couple of other things you might want to consider while making your decision whether to go through with the ileostomy. You may read and hear that people with an ileo have a more difficult time with diet, that they have to watch what they eat and are restricted from many things. This is true for some people, and they find they can't eat high fibre foods or other things that don't break down easily and may cause a blockage. What I have found from a couple of years of reading posts on this site and others, and from speaking to my ostomy nurse and surgeon, is that most people who have issues with diet are those with a history of crohn's or colitis and have developed scarring. I have found that I can eat anything as long as I am careful to keep well hydrated, and chew my food really well. Because your history is so similar to mine, I would think that you shouldn't encounter any problems with diet either. You do need to keep your fluid intake up, and chewing well is also a must when eating certain foods. I did have one blockage, when I was becoming complacent for a while there, so I've learned my lesson!
If I were you, I'd ask my surgeon about getting a loop ileo to begin with, just so you can always reverse it if necessary. For me, there was no question of going back and my life improved 100% with the ileo. It's a pain to live with two stomas (although the colostomy stoma doesn't function and you only need to wear a stoma cap over it) but it's only for a while, and that way you know you are giving yourself every option there is.