Managing Dual Stomas: Colostomy and Urostomy Challenges

Replies
2
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502
Rcote0621
Oct 12, 2022 5:14 pm

I just got out of the hospital from a huge surgery. I've had a colostomy since 2002 and after a time, was able to accept it and was basically problem-free for the most part. I could literally change it in my sleep. I had two surgeries prior to the latest where they messed around with my stoma, so I had several weeks of waiting for it to get to a normal state. So that's what I'm trying to do now, only it's waiting for TWO stomas. I am having a terrible time getting a seal on my appliances. While I'm working on one, it leaks over to the other one and then I have two appliances to deal with. It might not sound like it should be a big deal, but it's so stressful. It has broken so many times. I am frustrated beyond the limits of my medications!

AlexT
Oct 12, 2022 5:23 pm

You have way more time with a stoma than me, but when they messed around with your stomas, is there scar tissue there now? Your wafer/ring won't stick or won't stick well if it's on any scar.

Posted by: drfields24

Hello everyone!!!

It has been almost a year since joining this site. I just wanted to share. I know a lot of people get concerned about meeting someone on here. I'm not a lifer membership and I had someone initiate to take me out. I've been divorced since 2009. He lives in Chicago. I ignored the first time thinking he was joking. I live in Milwaukee. So a month later he sent me a message through this site saying he wanted to meet me. That was in April this year. I must say it was the best thing that could happen to me. We talk almost every day. We have so much in common. He comes up all the time to spend the day or weekend together. It really does make a difference when someone has an ostomy like you. Such understanding and we always have something to talk about. I want to share because sometimes people think it's hard to meet someone or they say this site doesn't work. I'm a testimony that this site does work. We are talking marriage this time next year. I will keep you posted.

TerryLT
Oct 12, 2022 8:21 pm

There are a few other members on this site with urostomies and colostomies or ileostomies. They may have some tricks up their sleeves, and hopefully will read your post. I wish you the best of luck. It sounds like you have a lot to deal with.

Terry