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Gave myself an ileoscopy today!

 
This is the best website for people with an Ostomy. So much understanding.

A few weeks ago I went in for my annual routine ileoscopy. They sedated me and when I came around the Doc's assistant told me they couldn't get the scope in my stoma, as it appeared to be swollen shut (or something like that).......so they couldn't scope me.  She said something about finding a good surgeon and having him fix it.  Nice, real nice. Then she skeedadled out of there before I got belligerent with her. 

So I got with the fine folks at the Small Bowel Transplant group at my hospital of choice and we had a chat.  After an MRI-E we saw what looked like a small kink in my stoma just a few millimeters in from the end.  That would explain the pain I was having and why I was partially obstructing every now and then....and now.  There was no sign of any active disease, which was very relieving, but I wanted to be sure, as MRI's are only so good at looking at soft tissue.  So I asked the Doc if she'd scope me so we're all sure there's nothing going on in there.  So in I went this morning, and since I wasn't being sedated the whole process was super quick and easy.  

Now this Doc I was with today had never seen my stoma.  So she didn't know what she was in for.  They wheeled me into the exam room and the first thing I noticed was that they had the scope set up with the larger colonoscopy probe end.  I looked at the Tech and said that ain't gonna work.  She looked puzzled so I had everyone gather around me and I popped my bag off.  You could have heard a pin drop.  So the Doc, after regaining her composure, tells the Tech to get the real small baby scope.  And the Tech goes out of the room and brings back a scope that was a little bit smaller.  Maybe 2 or 3 millimeters or so smaller.  And I looked at here again and said.....ain't gonna work.........you got anything even smaller?  So out she goes and this time comes back with the infant sized scope she should have brought back the first time.  Now by this time I'm trying to jam my finger in my stoma just to gross everyone out, and of course it starts bleeding.  So now we got some color to go along with the excitement.  So the Doc takes the infant scope and gently tries to put it in my stoma.  It wouldn't just slip in, so I told her to push on the damn thing.  Which she did and BINGO!.....she's in!  And what a wonderful intestine it was!  I'm guessing she usually only sees disease ridden bowels, because she was going on and on about how wonderful it looked in there.  There was nothing to take a biopsy of, so I said......great.......now go in further and let's see what else we can find in there.  So she went a few centimeters farther and was satisfied with what she saw........and was about to pull it out.......and I said oh heck no........keep going until you reach my stomach.  I'll let you know when!  And she wasn't too keen on that.  So I said......can I try?  And she had that same puzzled look on her face that the Grinch got when the people down in Whosville still came out and sang Christmas carols even though they had no presents.  And then she said reluctantly.......ok.  So in it went.   And went.  And went.  By 75 centimeters she'd had enough and insisted I take it out.  So we got some cool pics of a very nice bowel.......and I'm satisfied that there is no disease activity. 

It did feel a bit weird sticking a long black borescope in my intestines, but since we didn't need to use any air to expand the bowels.......was totally painless.  And a bit fun.  I told her I was going to order one of those 10 foot drain cameras from Amazon and do it myself at home.....and she nearly passed out.  All in all it was a fun day in the Colo-Rectal Procedure room!  Can't wait until we do it again next year........as I now have a record to beat.  I've only got 140 centimeters of bowel, so maybe we'll just go for the gusto and see if I can reach my stomach!!  Now who said getting scoped can't be fun!! 

;O) 

 

Sounds like a TV sitcom in the making, K.

MeetAnOstoMate - 28,358 members
 

Lol I’ll bet she’s praying you don’t come back for a very long time!!!! Hahaha

😇

 

This is likely going to be their most interesting case for a very long time!

 


Earth Angel wrote:

Lol I’ll bet she’s praying you don’t come back for a very long time!!!! Hahaha

😇

Actually, she told me she enjoys having a patient that knows what's going on, and looks forward to working with me........which she will be doing a lot of.  At first, when I was finishing her sentences for her I thought she might be annoyed.  But turns out we're on the same team.  Now the Dietician..........I'm not so sure about her yet.  But time will tell.  To be continued..............

;O)

 

What a great post! Funny that you should mention drain cameras as I was looking at some ads for similar things that might be suitable for DIY colonoscopy. I haven't had one myself, but I'm inclined to think that anyone other than me doing it will be likely to cause damage. 

Best wishes

Bill

 

Okay - it’s gonna take me at least the next 2 hours to get over this 

 

Hi Bob geez i thought showing a young intern and nurses what a stoma looks like was entertaining but showing a dr. how to use a scope is awesome.

 


Bill wrote:

What a great post! Funny that you should mention drain cameras as I was looking at some ads for similar things that might be suitable for DIY colonoscopy. I haven't had one myself, but I'm inclined...

Hi Bill,

  To be honest, I've considered the drain camera thing seriously as an ileoscope.  They're actually smaller than what the Doc uses.......primarily because they don't have the ability to take a biopsy and can't really be navigated thru the bowel.....but otherwise I'm not seeing anything wrong with using one.  The head of many drain cameras is a smooth hemisphere, so not too much chance of perforating the bowel, but without the ability to turn the head and navigate like the Doc's scope.....you'll only be able to go so far.  But technology marches on and I'm seeing drain cams now that do have controllable heads that don't cost a fortune.  And that opens up a LOT of possibilities.  I picked up a 25' drain cam a year or two ago........to look at my floor drain, not my intestinal plumbing.  It simply sends a Wi-Fi image to my tablet (or smartphone) and is incredibly easy to use.  They have a small, but very bright LED lamp on the head......and really are pretty amazing for what they do and cost.  Maybe next time I get scoped I'll bring my Amazon drain scope with me and ask if we can put it in when she's done with her scope.  That should put her on the floor for sure!!  

;O)



Last edited by w30bob on Fri Oct 21, 2022 11:25 pm; edited 1 time in total
 


ron in mich wrote:

Hi Bob geez i thought showing a young intern and nurses what a stoma looks like was entertaining but showing a dr. how to use a scope is awesome.

And next the Dr. will be showing Bob a bill for their services  😏

 

Yeah, seems the bill thing is always a one-way street!!

;O)

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