I bet you are their favorite patient! There should be some kind of frequent flyer program where you could earn points for some cool prizes and some sort of magical way to refill your resiliency.
Hang in there!
elledubuque
Jan 07, 2023 4:12 pm
elledubuque
Jan 07, 2023 4:14 pm
I bet you are their favorite patient! There should be some kind of frequent flyer program where you could earn points for some cool prizes and some sort of magical way to refill your resiliency.
Hang in there!
This is a remarkable community of 40,872 members.
You will get real advice from fellow ostomates who truly understand you - things you won't find in the books.
And it's not all about ostomy - there is friendship and relationships too.
Privacy is very important - your profile is not visible to the outside world.
ConnMan
I began my Urostomy life February 27th, 2023...a month and a half ago. I stumbled upon this site from another on Youtube and website called VeganOstomy and between that site and this one, most of my fear and worry of not having any answers other than calling the Dr's office recording menu and hoping to hear back in the next day or two for an answer to leaks, skin irritations etc, or just feeling alone and the "no one understands" thoughts I had to look forward to in my mind were all put to rest by these two websites and the community here at MaO!! I have been here for a few weeks now, and the help and support offered by the members here is just amazing!! The information and support is absolutely priceless for anyone recently out of their surgery and have tons of questions or had it for years...sit down...have a good read and you will see for yourself!!
ppaxson
Apr 18, 2023 2:06 pm
That's just a simple reminder to slap your physician around a bit when they don't take your concerns to heart.
My recommendation is to read up (or get a textbook) on medical terminology. That way, you can speak med-speak. I've found that when I use the appropriate terminology, physicians tend to listen better because it finally clicks in their brain that you have an idea what you're actually talking about. I personally don't take shit from ANY specialty whatsoever because I know when I'm right and when something is being overlooked or not being taken seriously.
When in doubt or something just doesn't seem right or your concerns have not been fully addressed, make yourself a fly. You'll drive the staff crazy, and often they'll do anything just to get you to shut up and stop zipping around their heads. Medical professionals will always cave to the squeaky wheel, so if you feel you're not getting the appropriate answer, squeak like hell. Leave three messages an hour, leave three voicemails, call other docs on the care team to get what you want. You know your body best, and when someone doesn't give you the appropriate time of day, make them pay.