Reply to IGGIE
Iggy,
Talking to a stoma nurse is the best advice initially, but many ostomy nurses, like doctors, may or may not know their stuff. Many ostomy nurses that work in hospitals, especially the newer nurses, simply don't have the knowledge or experience base to solve complicated ostomate problems. They treat patients who just received an ostomy and are there for a week and then discharged. So their experience is with people who basically are bedridden and then walking.......and that's about it. And I'm not deriding ostomy nurses.......they're just like everyone else.......some excel at their job........and some are just going thru the motions. In the past I've become friends with the ostomy nurses at two of major hospitals in my area. Both have since retired and were replaced by young nurses who are still textbook fresh, and don't have the vast experience of those they replaced.
During my stoma revision a couple weeks ago the ostomy nurse that came to help me was a very young nurse and she only had Hollister products to use. And most hospitals use Hollister for whatever reason. So she has no experience with any of the other brands and products that are out there. I sprung a leak after she changed my barrier and when she came back she was totally puzzled at how what she just did could have leaked so fast. And in her tray of ostomy goodies she had the exact same products she just used on me that leaked. So she just reapplied another Hollister barrier and hoped for the best. She was certainly no problem solver........and again, not her fault as she has to work with what she has and just hasn't been exposed to any of the myriad of alternate ostomy products or what they can do for a patient. I realized she couldn't really help me, so I ended up pulling out a Mio barrier and bag I brought with me and solved the problem.
So my point is all ostomy nurses aren't created equal, and many that don't have a lot of years under their belts may not even know about all the products out there to help us in our individual situations. And I don't see that situation getting any better anytime soon. So by all means contact your ostomy nurse.......but be fully prepared to contact other ostomy nurses if the one you're dealing with can't fix your problem. Personally, I find the ostomy nurses that work for the product manufacturers to be more experienced in dealing with the problems seen on this forum than those in the hospitals. Just some food for thought.
;O)