Life with an Ostomy: Sharing 30 Years of Ups and Downs

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714
Rudy
Feb 23, 2008 4:27 pm
Hello:

I hope that everyone is well. I can't believe that it's been nearly two years since I've been on this site. Meeting new people, especially fellow ostomates, is really neat and interesting for me.

It's also over 30 years for me since having surgery for ulcerative colitis. On December 23, 1976, I went under the knife at North York General Hospital here in Toronto, Ontario, Canada.

Sure, things seemed strange and difficult, but it certainly changed my life for the better.

Over the next little while, I'd like to share some of the good and bad times of life with a pouch. A lot of funny stuff has happened, and some scary stuff as well.

For example, when I was down in Mexico on vacation, swimming in the ocean, a wave came along, and the strength of it took the flange and pouch right off! I had to try to place it back and hold it under my swimsuit and got back as quickly as I could to my hotel room. My friend was laughing his head off, but I was so embarrassed.

Well, I'll try to get back later with more "horror" stories.

Everyone, stay safe, and enjoy.
feeling goog
Jul 17, 2008 7:27 pm

That must have been very hard for you at the time. When you look back on it, doesn't it seem that bad because I am sure everything worked out? Feeling good.

Posted by: freedancer

In both of my cases, I had no choice. It was surgery or be put 6 feet under! I thank God that He has been with me all these times. Without Him, I never would have known what to do and might not have gone to the hospital when I did. I don't know if you have had your surgery or not yet but I hope you will hang out on this website when you are done. I have learned a great deal through the people here and it is so great having others who have had the same thing done and been through what you are about to or have gone through. The only thing I have turned down is a reversal of the ileostomy. When the doctors did the emergency rebuilding of my original ileostomy this last February, I told them I did not want to go through this again. My doctor told me at that time that I was no longer a candidate for the reversal. In a way, I was very relieved. The last three years of my life have been a nightmare for me. I do not want to go through any of it again. If you wish to be rehooked up and they say you are a good choice for that, research it carefully. Every surgery I have ever had except for Old and New Maxine and the emergency surgery on my broken foot, I have spent weeks researching. I recently had my C5 C6 disk in my neck replaced with an artificial one. I went to my pre-op with 2 pages of questions for the doctor. I knew everything that they were going to do and could talk intelligently with them. I always try to research my adversaries! Don't cancel your surgery. It is nice not to have to suffer any longer with horrible pain. We all had to change a few things around when we had our surgeries but in the long run, most of us are glad we did it. I know I am. Good luck to you!

jadegenie40
Jan 14, 2009 8:21 am

Hi Rudy, just letting you know that I read your blog and for the first time in months, I actually had a bit of a giggle. Thank you very much and take care of yourself, okay? jadegenie40.