Back to Cleveland Clinic: My Ongoing Health Journey

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sweetkat
Feb 18, 2010 9:06 pm

Well, I went to the doctor today, and he's sending me back to Cleveland Clinic. Seeing how I'm from Southern Indiana, it's a 6-hour drive, and I'm not good at driving in big towns, ahhh :) but, I think my husband and I got through to him. He said in the past 2 1/2 years I've been in the hospital 26 times, way too many for me. I know there are many out there that have it much worse, but, as my dad says, it doesn't make what you're going through any less tough, and I agree. We have some diagnoses, but nothing that's going to help right now. I have bad memory, so if I repeat myself, sorry :) My bowels don't work, and that's why I have an ileostomy. I have 5 other diagnoses, but I won't get into that. I don't like to talk about the bad stuff in my life, and in our own way, we're all kind of going through that, so it's a mutual comment. Anyways, I'm really hoping that they will be able to find out what the hell is going on, so I can eat again! I'm on a TPN bag, but I'm not going to let them put it into my gut; for now, it's going into my PICC line, short term, so the sooner they can get me eating, the better. Boy, do I miss pizza and popcorn, and I love me some pork, yum! Making me hungry just talking about it. Anyways, I'll hopefully be leaving in a few weeks, but they'll be doing about 2-3 weeks of testing. I've got a lot of unresolved issues that I'm just not willing to give up yet, and don't know that I ever will. If anyone knows places that specialize in weird cases, please let me know. I've already been to Mayo and Cleveland; this will be my third time there, so I'd better find some help, lol. Try to have a little humor, huh. Talk to you all later... Bye

banshie3by5
Feb 19, 2010 6:54 pm

How aggravating for you, no diagnosis or clear treatment. I remember the "my mouth is so bored" ha ha. Funny now, sucked then. Can you get a GPS for your car? Good luck.

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