Unexpected Complications with My New Stoma

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craig1984
Jan 21, 2011 4:26 pm

Well, what can I say? Just as I'm getting on well with this new stoma, I notice that I have poo coming from two separate holes under my skin. I've phoned my stoma nurse and have to wait until next week to see her. This is hurting as my wound is still fresh. What could this be?

lottagelady
Jan 21, 2011 11:28 pm

Hi Craig - do you by any chance have what's called a loop ileostomy? If so, that could be your second hole. The other alternative is that it could be a fistula - not quite sure what you mean by 'under your skin'? They usually occur if you have Crohn's. Not sure why your stoma was formed, so cannot be much more use! Hope you get it sorted soon - may be nothing, fingers crossed. Rach xx

Posted by: GoinWithTheFlow

Hubz had a regular checkup with the oncologist on Friday (his numbers are improving), and as they were asking how he's feeling since surgery, they became curious about how he's doing so well with his ostomy, both physically and mentally. He credited doing research online, trying different things, and especially the support from this group. They were asking because they see so many patients struggling to adjust.

We described this group as folks with every kind of ostomy, some for days while others for decades, but all willing to share what's worked for them with the caveat that every individual is different.

We described the most valuable element as feeling like you're not alone in this. That really piqued their interest, and they wrote down the link. It seems they had a few people in mind that might benefit from the community and thanked us for telling them about it.

You know, we can't remember exactly who we learned about this group from, but we're grateful for it every day! Thank you all! 🌻