Ileostomy Complications After 13 Years: Seeking Advice

Hi, I'm new to this, but I have a slight problem... I've had an ileostomy for 13 years, but I still have a stump left in case I could have it all reversed. I've now found out I can't, as I still have colitis in the stump. My doctor told me I would need this removed within 10 years of my operation, as the stump will start dying off since there is no nourishment going through it. I am now worried sick, as it's been 13 years, and every time I talk to someone about this, they tell me there is no rush. So, as you can see, I'm very confused with the whole thing. So please, can someone help me out? With thanks...

Removing the rectal stump was the last of my 23 surgeries and it was the best thing to do to stop urethral-rectal fistulas which were a constant problem. You have a chance it seems to get rid of your remaining disease. As long as you have UC or Crohn's the chances of it recurring elsewhere is great. It will take a while to heal...usually up to a few months. My first surgery was at 11 and last at 20. No problems for 40 years until a stoma revision due to wear and tear. Things will work out for you. Only positive thoughts.. Barry

Thank you, Barry. I'm glad there are good people who I can talk to who know what they are talking about, as they have gone through it all, Paul.

I had no idea stumps had to be removed. I know I'm not helping you, but you sure helped me. Thanks.

Hi, I've just found out I now have to have my rectal stummp anus removed as the Crohn's is causing too many problems in the stump. From discussions with my consultant, it's not always necessary to have it removed as, if you're lucky, you may never have problems with it. I logged on tonight to see if anyone had recently had their rectal stump removed; the surgeon drew me a diagram of how my rear end will look but I thought that if I could speak to someone else who's been through it, it might be helpful. Sorry I've not been very helpful but I will let you know how I get on once I've had it removed. Take care

Stories of Living Life to the Fullest from Ostomy Advocates I Hollister

Hi Belle, hope all goes well, and please let me know how it goes. This will be very helpful. I'm now getting problems with the discharge coming out on its own without any pressure (sorry to put it so disgustingly), and I still have colitis in it and sometimes get very bad pain in the bum area, so I think I need to visit my doctor. Nice to talk and hope to talk soon. Thanks, Paul.

Hi LemonAs, Bella stated that I think you only have to have it removed if you are getting problems with it. With thanks, Paul.