It's been a little over a year and a half since my colostomy, and I just experienced my second public leaker. My pouch was empty when I got to Walmart to do some grocery shopping, but I had just finished eating half a box of Godiva chocolates that I got from my husband on Valentine's Day. There I am, filling my cart with groceries, and I suddenly felt my pouch rapidly filling with poo, not realizing that my pouch was starting to leak. I bumped into a friend of mine who usually gives me a big hug when she sees me, but for some reason, she just said hello and ran off in a hurry. I thought maybe she was just having a bad day. After I was done filling my cart, I thought I felt something warm and wet on my thigh. Oh shit! What do I do? Leave my cart of groceries and go home? Or do I go to the line and pay for my groceries and hope no one can smell poo? I decided to go ahead and pay for my groceries. I didn't feel like making a second trip to the store later. Luckily, there was only one person behind me and no one in front of me. I got home and sure enough, I had leaked, and it was running down my leg. Must have been the chocolates I ate. I cursed and cussed all the way home, feeling embarrassed and angry as all hell about it. Donna
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Geekyjen,
Thanks for the reply. I will be seeing my doctor on Friday and mention Entyvio. I did not remain paralyzed for more than 2 days, but it was terrible and I was so scared. The doctors just used alot of xanax and other drugs like that to UN paralyze my joints that were being attacked by the remicade. Turns out I have been diagnosed with LUPUS. It is attacking my nervous system. I had ulcerative colitis in 1996 and they had to remove my colon. Had a J pouch for 10 years, until it started failing. I then got a permanent iliosomy, and I suffer from severe chronic diareha, and I dehydrate frequently. I recently had a proctectomy, and that is when the new autoimmune disorder, Lupus, appeared. I have had two hospital stays now because of the blisters and the paralyzing incident. I will be dealing with this forever now. I have just been working on acceptance.
I love this website because of wonderful people like you!
Betty
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