Helping U Live

lovelessdiamond

Mar 30, 2016 3:22 am

Hello friends...

This is my first blog this 2016, and I decided that I would randomly talk about my experiences and resolutions in different matters of having a colostomy...

I want to tell you the first time I experienced having a CB (colostomy bag) was waking up out of a coma of 3 months... Yep, I swear I thought I was able to talk, but the

whole time a tube was in my mouth and a machine was helping me breathe, but that's another story...

Okay, is it me, or do the doctors forget their bedside manners when telling you that your life is the same as it was before the surgery... So wrong, it's not. It's

scary, crazy, embarrassing, and heart-aching at first for some... The first thing that came to my mind was, I will never have sex again, LOL... I will never find true love

or get naked. Ugh, my life is just over. Who wants to be around somebody who can't control the sound of their bowels? I just cut myself off from

the world for the first year, but that next year I refused to lose... Hey, God gave me a second chance to actually live again! Why am I wasting it feeling

sorry for myself? No, no, no... I'm going to live and make this work for me in every way, so this is where my blogging begins, ladies and

gentlemen... I ask you, do you want to live? Haven't you already proven your strength by still being here and dealing with your issues of having some kind of ostomy?

Look, I'm going to help you come out of the box and live if you're not, by doing some very simple home remedies that will save you money and some discomfort... Please feel

free to ask me anything, and I promise I will respond, find out, or help you figure it out... Let's start the journey... Oh, I have had my CB for 12 years...

Bill

Apr 03, 2016 8:12 am

Hello lovelessdiamond.
Thank you for your post, it was a very interesting read and reminded me of the importance of having new contributors to a site like this. People such as yourself can provide insights into feelings and experiences that strike a note with others who have also been through similar experiences. I hope that you get a few replies to this post and that you continue posting in future.
Best wishes
Bill

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Posted by: freedancer

In both of my cases, I had no choice. It was surgery or be put 6 feet under! I thank God that He has been with me all these times. Without Him, I never would have known what to do and might not have gone to the hospital when I did. I don't know if you have had your surgery or not yet but I hope you will hang out on this website when you are done. I have learned a great deal through the people here and it is so great having others who have had the same thing done and been through what you are about to or have gone through. The only thing I have turned down is a reversal of the ileostomy. When the doctors did the emergency rebuilding of my original ileostomy this last February, I told them I did not want to go through this again. My doctor told me at that time that I was no longer a candidate for the reversal. In a way, I was very relieved. The last three years of my life have been a nightmare for me. I do not want to go through any of it again. If you wish to be rehooked up and they say you are a good choice for that, research it carefully. Every surgery I have ever had except for Old and New Maxine and the emergency surgery on my broken foot, I have spent weeks researching. I recently had my C5 C6 disk in my neck replaced with an artificial one. I went to my pre-op with 2 pages of questions for the doctor. I knew everything that they were going to do and could talk intelligently with them. I always try to research my adversaries! Don't cancel your surgery. It is nice not to have to suffer any longer with horrible pain. We all had to change a few things around when we had our surgeries but in the long run, most of us are glad we did it. I know I am. Good luck to you!

Mrs.A

Apr 03, 2016 9:09 pm

Hi lovelessdiamond,
Nice blog. Living with a stoma doesn't have to be difficult once you realize that you are still you! True, it takes a bit of figuring out what works, but all in all, we are still the same person. I think that is what happens to some folks; they find a part of them they never knew existed before.
Looking forward to reading on~

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lovelessdiamond

Apr 05, 2016 9:52 am

Thanks

snuggles w/iliostomy

Apr 07, 2016 12:34 am

Hello Lovelessdiamond, I liked your post. I have just recently separated from my husband. I thought the world was done with me since I have had an ileostomy for three years. I have found that men do not want to date women with an ileostomy. It is becoming depressing. How do you deal with it? Any answer would be appreciated.

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