Still can't get on

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1
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892
keithy58
Jan 22, 2018 8:25 pm

I have a colostomy and an ileal conduit wee stoma.

I have loads of problems with my colostomy; it's been 6 years since I had them both. The wee stoma is fine, but the colostomy is an ongoing pain. I see the consultant tomorrow; I need another revision. I had one done in Dec '14. Now the stoma is bleeding warts.

So for all of you that have no problems, you're lucky. I had a perfectly good bowel and bladder. I had a compression of the spine, so I needed these stomas. They left my bladder in, but it went septic, so they removed it. I have had 10 major operations, all caused by me being left in compression of my spine for 6 days. I am also disabled; I have established cauda equina syndrome. I don't feel comfortable with my stomas; you can see the bags, so I wear baggy tops. It's not a picnic for me.

Bill
Jan 23, 2018 6:48 am
Hello keithy58.
Thank you for your post and I'm sorry to hear that you are having so much trouble.
I had not come across the term 'cauda equine syndrome' before but, have looked it up, I can see how debilitating it could be.
I hope things go well with your surgeon and that you begin to make some better progress in the future.
Best wishes
Bill
Caz67

Well it's just coming upto a year since I had my emergency stoma. Since joining MAOM I have learnt all different kinds of ideas to help with the stoma. Not only that I have made a lot of good friends who I can talk to. The beauty of this site is it's not just giving tips and ideas we talk about anything and everything. So thank you for giving us a great site. XX