Surviving Sepsis and Crohn's - Will My Bowel Movements Normalize?

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reyno87
May 11, 2023 10:35 am

Well, what a crazy past 12 months I've had! I got rushed in at the end of November '22 with a perforated bowel and sepsis due to Crohn's.

I had emergency surgery, to which I now have (Bruce), albeit temporary, a double-barreled jejunostomy, quite rare. It is a very tricky stoma, with very high output and everything else that goes with it, also both prolapsed, which makes things 100 times harder.

I had a meeting with the surgeon last Thursday and we're penciling in late October.

I'm just wondering if my bowel movements will go back to some sort of normal. I'm assuming if they want to put me back to one of those people, then everything should work to give me a better quality of life, right?

Kurt

avon1669
May 11, 2023 3:43 pm

I have been reversed in February, and since then everything is back to normal—well, my new normal. Some days it's solid and some days it's runny. What makes us the warriors we are today is our resilience to adversity and obstacles. Think positive and take it day by day.

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CrappyColon
May 11, 2023 4:19 pm

So what type of reversal do they do with a double-barrel jejunostomy?

reyno87
May 12, 2023 5:32 am
Reply to CrappyColon

To be honest, I'm really not sure. All I know is he has four reconnections to do.

Ben38
May 12, 2023 8:04 pm

I would have a word with your stoma nurse/consultant about it.

I can only speak from having an ileostomy, then needing an emergency endjejunostomy stoma, then back to ileo after 18 months. I had a large piece of my small bowel removed due to perforated small bowel sepsis and peritonitis. That's made a big difference to my ileostomy output; it's much looser than it was before, but I have no idea if it would have the same effect with having a reversal.

Hope your reversal surgery is soon and I'm sure it will all go well.

 

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