I currently have a suprapubic catheter and also wear an adult diaper 24/7. I'm considering getting a urostomy but am not sure of what the lifetime issues might be. Are the maintenance issues with a urostomy very demanding? Is there much concern about leakage and care for the stoma? I'd appreciate any feedback about the pros and cons of an ostomy.
Point
Nov 09, 2023 8:57 pm
AlexT
Nov 10, 2023 3:09 am
I have no idea about an urostomy, but remember this: every ostomy, no matter the type, is different for everyone. One person has leaks, another doesn't. One can eat whatever while another has limitations. As we are all different in our own ways, so are ostomies. Reading what you described, I'd rather have an ostomy than wear a diaper, but that's me. Good luck either way you choose.
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Hubz had a regular checkup with the oncologist on Friday (his numbers are improving), and as they were asking how he's feeling since surgery, they became curious about how he's doing so well with his ostomy, both physically and mentally. He credited doing research online, trying different things, and especially the support from this group. They were asking because they see so many patients struggling to adjust.
We described this group as folks with every kind of ostomy, some for days while others for decades, but all willing to share what's worked for them with the caveat that every individual is different.
We described the most valuable element as feeling like you're not alone in this. That really piqued their interest, and they wrote down the link. It seems they had a few people in mind that might benefit from the community and thanked us for telling them about it.
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