Mucus discharge

Replies
21
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556
SeanB

So I had a colostomy and a Ken butt surgery. Initially had some mucus discharge but it eventually stopped. But it has since come back. Will there always be mucus discharge or will it eventually go away?

thanks

AlexT

If you have your butt completely sewn shut, you should have no discharge. 

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CrappyColon

Just double checking… where is the mucus coming from?

SeanB

Anal region

warrior

Sean.

I'm Tony. We might be neighbors. Same state. Different counties.

You have my attention. You work on cars?. Me too.

You have a recent Kenn butt? Me too.

As Alex mentioned if you are sewn up butt wise there should be no mucus.

now i know there is drainage..i feel it. a dribble between cheeks. 

It sometimes stains.has an oder too.

im 12 weeks post op.

saw doctor thursday. its normal for some leakage but will stop.

how if u have a fistual maybe that could be possible. but rare.

where did u have the surgery? who is your doctor?  i live hear ocean county college. but my drs are all in red bank nj.

welcome aboard. speak your mind I'd be happy to meet you as well but haven't heard of your town. 

Also if you don't mind please explain to us why you have a colostomy with a sewn butt because my take on that is colostomy patients retain their large intestine for future hookup yet you say your butt is sewed up and that to me says they removed the large intestine ..so if you didn't mind explaining exactly what you think you have then maybe we can help you out.. nine times out of time the doctors never really tell you the truth and I know that sounds sick but they only give you a little bit and maybe misunderstood them but it's important for us to know where you're coming from and it's a little confusing having a colostomy and having the butt sewn up so feel free to elaborate you know give details and the more you give us the more we can give back okay hope to hear from you thanks

 
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SeanB
Reply to warrior

Hi Tony

Maybe it isn’t mucus but just discharge. Hung up a bit on mucus as I did have an abscess that was infected that I had to deal with post-op.

I am wearing pads all the time and would love for that to end as I think it adds to the overall discomfort. But it beats getting the bed wet and such.

We are in south Jersey in Salem county. Drs are part of the UPenn-Virtua group in Cherry Hill outside of Philly.

thanks

warrior

aaahhh. salem. cool.

abscess not cool.

good hospital.

so it would be safe to say the abcess was from a fistual?

i had  one abcess many yrs ago. oh thats a bitch. especially living alone.

u had drainage i am sure.

it is normal. will heal. just dont aggravate it. keeping legs.close..

rolling into bed or car.. be patient. its all still new for u..

Beachboy

I'm curious, why a Ken butt if you have a colostomy?  I have a permanent colostomy, with butt parts left in place.  I considered reversal, but am not a good candidate due to previous radiation treatment.

I have read, if you don't get a reversal with a colostomy, eventually you will need Ken Butt surgery.  Possibly to prevent cancer in that area.  Not sure if that is correct.   

warrior

that is correct..was told same thing 6 yrs ago. and the puzzled faces continue...at Sean's situation. 🤔

SeanB
Reply to Beachboy

I had rectal cancer and the tumors were too close to the anal opening even with chemo and radiation. So, they had to remove the anus.

warrior

as john bellushi in animal house:

HOLY SHITH. !

on man. explains the bag. i cant comment on the rectal cancer.tumors etc... but beachboy and alex know

more about that.  blessings

Beachboy
Reply to SeanB

Ok.  I didn't have underlying trouble like chrones, cancer, or ulcerative colitis.

I had a friend at work who refused to get a colonoscopy.  Finally after hearing enough grief from me, he got one.  Well.. Lucky him.  He had anal canal cancer, caught early enough to be cured by radiation.  Just a little longer wait, and he would of had surgery, a colostomy with Ken butt.  He thanks me all the time.  I sometimes flash my stoma at him to show what he's missing.

warrior
Reply to Beachboy

whoops. my bad. a thousand apologies to beachboy. 

imsafanwa

I'm still having mucous discharge almost two years after the ken butt. It seems to come out a bit forward of the former rectum and is both stinky and corrosive. Disposable underwear and constant cleaning are the only way to avoid a painful rash in the area. The docs say that a surgery would be needed to even figure out what's going on as nothing shows up on the scans. Not going there! Twice a day showers and baby wipes by the case, and getting by.

When I get frustrated and depressed, I try to remember that I should have been long gone by now. Colon and rectal cancer, stage four, and I'm over three years out from diagnosis. Often uncomfortable, but not nearly as bad as it was during chemo and radiation. 

AlexT
Reply to imsafanwa

Here’s my advice, not that it means that much but read it anyway. 😁 I had my surgery and everything seemed to be healing just fine. About a week after surgery I got a small drip from my butt. They had a hard time finding anything but then it opened up much more. Tissue damage from radiation. When it was at its worst, the whole back of my leg would be raw, like diaper rash, from it and I wore a pad for months. Only thing that healed it was HyperBaric Oxygen Treatments and then a small placenta graph. If I were you, I’d inform your doctor and see if you have the same issue. That diaper rash crap is horrible to deal with

IGGIE

G-Day SeanB,

If you have discharge from the Anal region and you have a Ken Butt then get off to the Surgeon and get it fixed, or It could be a Fistula. Regards IGGIE

SeanB

Called the surgeon. Back on antibiotics and have an appointment to see him first thing Tuesday AM. As long as things don’t get any worse, I should be able to make it.

thanks

warrior

fingers crossed neighbor🤞🤞

IGGIE
Reply to SeanB

Let us know the outcome, Good luck. Regards IGGIE

SeanB

Update ……

Discharge stopped a few days ago. Still taking antibiotics. Met with surgeon. Everything looks good to him. He suspects that I was/am still fighting an infection which was causing the discharge. He said things should really calm down and I should not expect any discharge going forward. So hopefully this is what happens.

Thanks to everyone here for your advice, kind words, and well wishes.

cheers

SeanB

Well, the stupid drainage has come back. Not heavy but still intermittently present. Contacted surgeon and have a new antibiotic to go on. Fingers crossed that this actually works and clears things up. I would hat to need some sort of surgical solution …. Been through enough hospital visits to suit me for a while. 

Fingers crossed.

 

Oscar23
Reply to SeanB

I had “Ken butt” surgery and had mucous post surgery. At one point I developed a fistula. To prevent infections the surgeon would periodically Debreed (spelling?) the open wound every 6 months to help shape the wound and get it to heal from the inside out naturally. We also tried hyperbaric O2 therapy for a couple months (it didn’t really help). I had a consultation with another wound specialist surgeon who considered taking my gracilous muscle (back of leg) and flipping it to fill the wound. We weren’t sure if it would reach and bot 100% it would heal fully. I declined the surgery. A home nurse would come daily to pack the wound with gauze and we let it naturally heal. Eventually it closed up on its own. Totally anecdotal, but I think when I rode a bicycle the discharge would increase. Sharing my experience so you know there are options. And sometimes doing nothing the body will heal.