In Memory Of Nanny Sheila - 50 Years With An Ileostomy

In Memory of Nanny Sheila - 50 Years with an Ileostomy

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ezaaaaxx

Jan 13, 2024 9:40 pm

Hello everyone, I am here to post in memory of my Nanny Sheila, who sadly passed away on Christmas Eve. She had an ileostomy at age 30, and had it up till when she reached 80 and sadly passed away. My nanny was a huge ambassador for ileostomy as she had one for 50 years. She didn't once complain about it, and rather was very proud of it. My family and I have created a ‘Just Giving' page in her memory where you can donate to the ileostomy charity in her memory. Nothing is too small, and every contribution really does help. My family and I are looking for some recognition for Sheila. Does anyone know if there is an ileostomy magazine or help page we could share her story in her memory, please? Thank you very much!

https://www.justgiving.com/page/erin-collins-1704406350438?utm_medium=fundraising&utm_content=page%2Ferin-collins-1704406350438&utm_source=copyLink&utm_campaign=pfp-share
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Dharms

Jan 13, 2024 10:26 pm

Hi,

Sorry to hear about your loss. Sheila's story will be an inspiration for all current and future ostomates.

I'm aware of Colostomy UK magazine, which is popular and sent to most patients with an ostomy in the UK (quarterly):

https://www.colostomyuk.org/

There's also the Ileostomy Association:

https://iasupport.org/

Both are charities that help raise funds for ostomy research in the UK.

Thanks for reaching out.

Best of luck!

Dharms

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Posted by: iMacG5

About seven years ago, just about every aspect of my life was ostomy related. From the moment I was told an ostomy might be needed until some months down the road I existed as a person afflicted with a colostomy. I feared someone other than my immediate family might find out I had a bag. Ugh! What could be worse? Suppose it filled real fast when I was out with no place to hide and take care of myself. God forbid should it leak in church! Suppose I roll over on it in bed. I was a lesser creature, destined to a life of emotional anguish and physical routines different from most of the rest of the world. I felt like a freak. Then I found folks like you guys here, read your stuff, really “listened” to what you had to say and I began looking at things differently. We know perception is everything and I began to understand how good things were relative to what they could’ve been. So many folks had it so much worse than I did. That didn’t make my discomfort go away but it exposed how fortunate I was to be dealing with my stuff and not their’s. I felt a little guilt, maybe selfishness but quickly forgave myself by understanding I just wasn’t smart enough to fix my feelings. Then, I wonder what smarts have to do with feelings. My perception was warped so my perspective toward my existence was warped.
I learned over the last few years with the help of lots of folks right here at MAO that I could be better at living just by accepting some facts. It is what it is and so what? It’s not the worst thing to happen to a person.
I think everything is, in some way, related to everything else. I just put the ostomy thing in the back seat and drive forward.
Respectfully,
Mike