Feeling useless

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5
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554
JESAC78
Feb 14, 2024 3:08 am

I have so much pain in my small intestine because I have a new obstruction from Crohn's, which I fully understand. I haven't been having symptoms since I had an ileostomy for 13 years now. So, they put me on TPN after a 3-week hospital stay, sent me home on it, and scheduled surgery for the 21st to remove this obstruction and possibly get a new stoma for the fourth time. I keep getting hernias. I'm so down about it all; I can't get out of bed except to go to a doctor's appointment.

I feel hopeless. 😔

Beachboy
Feb 14, 2024 5:03 am
Very helpful

Hang in there.  Many Ostomymates have had similar feelings.  I felt hopeless and lost when I was in the hospital last year.  Each day becoming weaker, with intense pain.  Doctors couldn't figure out what was wrong.  There came a point when I couldn't take it anymore.  I had lost 66 pounds, didn't eat or drink anything for a month, living on TPN.  In the depths of my despair, I asked God to help me.  As much as things went wrong for me, things suddenly went right.  I survived.  I have a hernia too.  Sucks.  But I live with it.

Never give up hope.  If possible, get a second opinion about your current situation.

 

Posted by: Audrey Warren

This site is a godsend. As a newbie (colostomy on Nov 8, '21), I look at it every day for a number of reasons. Reading what people are going through makes me grateful that my elective surgery because of a severe case of IBS-C is nothing compared to what they have been through and are still living with.

I don't have to go to the hospital for anything related to my ostomy. I feel sorry for those who do and am in awe of those who can use humor to describe their ordeal. I identify with those who express their fears. I especially identify with those who are depressed because I am clinically depressed and have general anxiety disorder. How ironic that having a colostomy eliminated some of the depression and anxiety that the IBS created. I've been widowed twice and I'm on match.com.
I immediately included my operation in my profile and am pleased to say it doesn't seem to make a difference.

And there is much humor on this site and it's one of the reasons I enjoy it so much.

I could name numerous things I've learned from reading people's comments/questions/answers.

After months following on a daily basis, my only negative comment is I don't like listing the most popular members.
It's not that I don't like these people; I do. It's that I think it elicits some "Facebook"-like banter or comments that are gratuitous.

I don't do any social media and think that its merits are overshadowed by too much negativity.

Meetanostomate is in no way negative. I just think the gallery of "popularity" detracts from what is an excellent website that deals with a serious issue that causes a myriad of emotions.

JESAC78
Feb 14, 2024 7:16 am

Thank you 💗

Beachboy
Feb 14, 2024 11:12 am
Very helpful

While in the hospital, my wife gave me a card with this Psalm.  I read it nearly everyday.

Psalm 18:6, 16

In my distress I called to the Lord;   I cried to my God for help.

From his temple He heard my voice;  my cry came before him, into his ears.

He reached down from on high and took hold of me;  He drew me out of deep waters.

Morning glory
Feb 14, 2024 12:50 pm
Very helpful

JESAC78, I agree with Beachboy. Please heed the advice. I love that Psalm too. You aren't  alone. 

 

My Ostomy Journey: April | Hollister

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Downtown
Feb 15, 2024 8:06 am

Hang in there JESAC78, it's a one-day-at-a-time battle.