This topic is about someone who has been living with Crohn’s disease and an ileostomy for 13 years. They are currently experiencing severe pain due to a new intestinal obstruction. After spending three weeks in the hospital, they were sent home on total parenteral nutrition (TPN) and are scheduled for surgery to remove the obstruction. This surgery might also involve creating a fourth stoma because of recurring hernias. The ongoing pain, surgeries, and reliance on TPN have left them feeling hopeless and unable to do much beyond attending medical appointments.
Here are some pieces of advice and insights shared by others:
1. It's normal to feel hopeless during long hospital stays, severe pain, and TPN dependence. Remember that recovery is still possible, so try not to lose hope.
2. Consider getting a second medical opinion before the surgery. This can help you explore all available options and feel more confident about your treatment plan.
3. Some people find comfort in faith-based coping strategies. Reading spiritual passages, praying, and seeking spiritual support have helped others manage feelings of despair.
4. Focus on taking recovery one day at a time. Setting small daily goals can help prevent feeling overwhelmed by the larger challenges of chronic illness, hernias, and multiple surgeries.
5. Connecting with others who have faced similar challenges can be very supportive. Many people with ostomies have overcome similar obstacles, and sharing experiences can help reduce feelings of isolation.
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