Ostomy

Replies
7
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481
chela54
Apr 14, 2024 12:17 pm

Wow... I haven't been on here since 2009, before my second ostomy reversal.

But here I am again. I will be getting surgery in June for an ostomy bag again, but this time it will be permanent. I didn't really have a choice. It was either this or antibiotics with leakage. But I have been dealing with leakage for a year and a half now, and I dislike it. Antibiotics every month, sometimes twice a month. So, you see, no real good choices. But this time, my husband passed away 3 years ago, and he was so kind to help me with the preparation. Well, I am not looking for a new man as I loved and miss him very much; we were married for 45 years, going on 46 when he passed. But I was on this website 15 years ago, and it sure helped me back then.

eefyjig
Apr 14, 2024 1:01 pm
Very helpful

Chela, I'm so sorry for the loss of your husband. It sounds like he was a good support for you through all of your surgeries. You say you were on here in '09 before your second reversal. This is your third? Did you have a j-pouch? I did have one and had regular pain and inflammation and was on constant antibiotics for five years. I, too, hit a point where I had no choice and now have a permanent ostomy. I get it, when enough is enough. Welcome back and ask any questions. There are several permanent ostomates on here and they are awesome folks!

Immarsh

Hi All, If you have an " old" or recent ostomy, this is the place for you. I think I've been a member for more than 15 years, but I have had my surgery, since I was a kid of 15 ( do the math-that's more than 60 years ago). As a teen, with a new ostomy ( for Ulcerative colitis) my parents dragged me off to my first ostomy association meeting. I wasn't happy, but in the long run, it's the best thing that happened to me. I met others, older, and teens like me, adjusting to the changes. A group of us started a Young adult group, and helped each other, and even visited kids who were new to the world of ostomies. But soon I married, and moved out of state, and although made some connections with other NJ ostomates, I became pretty much isolated. Until I discovered MaO. By then, I was having a myriad of other medical issues, and my aging stoma " wasn't doing well". I received a lot of help and support from members! I was pleased that I was also back to supporting others. I met a gal on line (from Papua New Guinea) who was trying to help ostomates in her country. There is a scarcity of supplies in some other countries, and unlike the US, insurance to pay for supplies isn't available. When my son followed his "love" twenty years ago, and moved to Australia I took advantage of an opportunity to help other ostomates. On one of my first visits to Oz, I brought a suitcase full of Ostomy supplies, handed them off to an Ostomy assoc. On the Gold Coast, who then had a friend take them to PNG. They were grateful for the help, and Janet and I still write.. This is the place to be, if you need help, and it also gives you the opportunity to provide help and support to others. Feel free to write, if you'd like to chat, about things ostomy, or life in general. Best REgards to all.. Marsha

gentlejohn
Apr 14, 2024 2:24 pm

Welcome back!

Permanent ostomies are not so bad.  It is a close brother/sisterhood.  

Morning glory
Apr 14, 2024 7:56 pm

Welcome back, awesome people here. Sorry to hear your husband passed.

Hisbiscus
Apr 14, 2024 8:56 pm

Hi welcome back I am rather newish here. I have an end ostomy but think of it like this... it's better than suffering and not having a quality of life. I'm so sorry to hear about your husband.  You know the ropes to the ostomy since you had it before which will help in this case. 

 

 

My Ostomy Journey: Ryan | Hollister

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infinitycastle52777
Apr 14, 2024 11:15 pm

Hopefully your life will improve once you adjust to the permanent ostomy. If you don't have to deal with leakage and antibiotics all the time I think you will start to feel better. I have been on here a year and I think it's a wonderful place. So welcome back and settle in. Great support here. 

Axl
Apr 15, 2024 10:01 am

Welcome back 

Beachboy
Apr 15, 2024 4:46 pm
Very helpful

Welcome back.

It really is about quality of life. It takes time at first to adjust and learn how to care for an ostomy. I've had mine for 15 months. I'm surprised how used to it I am now. In fact, I have to be careful... I sometimes take a peek at my bag in public, forgetting many people have not seen or heard of an ostomy. In my everyday life, my stoma sometimes makes lots of noise when I'm talking to someone. I just pat it lightly and say "quiet you or shush."

Cheers