I've enjoyed this Web site since signing up a few months ago and many of you have helped with coping techniques and helping me realize that I'm not the only one dealing with these challenges.
I have a very annoying situation with slinky here (stoma's pet name) and am wondering if anyone else has, or has had, the same problem, and if you've found a solution, either through surgery, manipulation, or anything else.
I have had my ileostomy since June 2010. Until last fall it was a normal size. Not even noticeable under my clothes. I could wear pretty much anything and could do the activities I did before the surgery. Now though is a different story.
The stoma began prolapsing last fall. It is now about 6 inches long and curves outward at the end. It swells up and gets very hard dozens of times throughout the day and is VERY noticeable through my clothes. It's quite noticeable even when it's not swollen (looks like I've grown a male appendage). I've always taken pride in my excellent physical shape but it has become painful to even play a round of golf. The stoma bleeds quite a bit.
Has anyone out there had this problem? Is surgery an option? There's no way I'll accept this thing long term.