Managing Loose Stools Post-Ileostomy - Seeking Advice

Replies
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965
Past Member
Jun 12, 2024 6:21 pm

Hey everybody, I am two years in with a colonoscopy, have had that removed, and an ileostomy placed, and I'm having terribly loose stools. I eat right, no junk food. I have seen people use a product they drop in the bag to thicken the stool. Does anybody know what that product is? I'm trying to find it to order. Thanks, everybody.

Megs
Jun 12, 2024 6:31 pm
Very helpful

https://trioostomycare.com/products/trio-pearls/

I think this is what you mean.

Posted by: ejbetty

Geekyjen,

Thanks for the reply.  I will be seeing my doctor on Friday and mention Entyvio.  I did not remain paralyzed for more than 2 days, but it was terrible and I was so scared.  The doctors just used alot of xanax and other drugs like that to UN paralyze my joints that were being attacked by the remicade.  Turns out I have been diagnosed with LUPUS. It is attacking my nervous system.  I had ulcerative colitis in 1996 and they had to remove my colon.  Had a J pouch for 10 years, until it started failing.  I then got a permanent iliosomy, and I suffer from severe chronic diareha, and I dehydrate frequently.  I recently had a proctectomy, and that is when the new autoimmune disorder, Lupus, appeared.  I have had two hospital stays now because of the blisters and the paralyzing incident.  I will be dealing with this forever now.  I have just been working on acceptance.

I love this website because of wonderful people like you!

 

Betty

Hisbiscus
Jun 12, 2024 7:24 pm

 


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eefyjig
Jun 12, 2024 8:20 pm
Very helpful

I will add to Hibiscus's list: thick butternut squash soup. Works like a charm.

aTraveler
Jun 12, 2024 10:23 pm

ConvaTec also has a gelling product:

https://www.convatec.com/ostomy-care/forms/request-sample-diamonds/

You should request samples from both.

In terms of diet, bananas are excellent at solidifying output for me.

 

Words of Encouragement from Ostomy Advocates I Hollister

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Past Member
Jun 13, 2024 10:53 am

That's exactly what I mean! Thank you so much. Life saver.

jshowe
Jun 14, 2024 8:39 pm
Very helpful

My ostomy nurse said Metamucil is good. I have three gummies in the morning and a couple at night. No more liquid output.

infinitycastle52777
Jun 14, 2024 9:31 pm
Very helpful

I have found that to be true about butternut squash soup also!

Kimmy050263
Jun 15, 2024 10:03 pm

My output did not matter what I ate! Sometimes thick, sometimes pure liquid. I tried some things, but Ms. Stoma had a mind of her own. I just dealt with whatever she decided to expel. I hope these tips work for you!

Kim

 

IGGIE
Jun 16, 2024 2:49 pm

G-Day Kimmy, I totally agree with you. You deal with what you get. IGGIE