Had lots of gas, pain, and thickened output. After the CT, I was told I had an ileus. Since I was eating and drinking, I was sent home. Still having pain, not as much cramping. Has anyone ever experienced this, and when should it start feeling better? Days before this happened, I started eating slaw that was ground up well. I thought at first it was because of this. Any thoughts? It's nice to have a group to talk to.
JOSHWILRYAN
Jun 18, 2024 8:12 pm
Hisbiscus
Jun 18, 2024 9:17 pm
I've had ileus twice. Once before I ever had a stoma and once with my proctocolectomy/end ileostomy operation.
It does last for a while, although everyone can be different.
The most important thing is to listen to the doctors. Take whatever medications they prescribe and adhere to any special diets they recommend, be it liquid, soft, etc. You have to do this no matter how hungry you are because if you eat anything other than what they tell you, the ileus will just get out of control. So, do what they say until it settles.
It's a horrible thing to experience. The one with my operation had me in the hospital for 30 days, and they gave me a feeding tube in my stomach with a bag to empty the contents of my stomach because I complained so badly about the nasogastric tube. It was an experimental solution they were trying out, and it was much better.
I also got sent home on TPN feedings through my blood veins because I could not eat anything. The hospital sent everything to my home as well as a small refrigerator to keep all the TPN in. An IV pole, etc. It was crazy! It subsided about a month after being sent home, so for 2 months it lasted.
The one before, I have no clue what happened. It was my colon at that time, and I had to be on Reglan and stay on a liquid diet. It never really went away, but I was able to eat some soft food at one point and then shortly after my temporary ileostomy.
Walking might help. Don't overdo it, but walk around. Are you in the hospital, or are they treating you at home? Did you need a nasogastric tube?
Came back to edit to add that the ileus I had with my operation, they also put me on liquid erythromycin for a while as that helps with ileus.
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Hisbiscus
Jun 27, 2024 2:00 pm
Paralytic ileus, where the intestines freeze up and stop working. They paralyze, and you vomit bile if you eat, can't go to the bathroom, and experience massive stomach pain. It happens a lot in bowel surgeries, as my colorectal surgeon told me; anytime you go in there, moving and messing around with them, there's a big chance.
Also, you can get them from other things too, even without surgery.