Struggling with Wafer Adhesion Due to Sunken Stomach Area

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664
whitneyg421
Aug 03, 2024 1:39 pm

My stomach has become sunken underneath my stomach, which is causing the wafer to pull away and all of my output to go right underneath it. I can't change the appliance every time I have output, but I've tried the barrier rings (the flexible half-circle thingies), and those pull away from the skin as well. I haven't tried stomapaste. I'm a little afraid that it will irritate my already irritated skin. I'm having a procedure to get rid of some pockets of fluid, which they think is causing this issue, but until then, any suggestions? I'm almost out of wafers and a week from when my insurance will reorder, or else I'd just keep changing it until I'm "fixed".

Happytostillbehere
Aug 03, 2024 2:53 pm

Damn shame that insurance company policies are so rigid when it comes to reordering supplies in case of emergency situations. Like that old saying, let them walk a mile in my shoes. Policy would change overnight.

Justbreathe

MeetAnOstoMate website turned out to be a lifesaver for me. I say this because, for me, this ostomy journey was a devastating event both physically and mentally.
Here, I found folks who understood my feelings even better than my family or friends could. Only a fellow ostomate can understand how you really feel.

Information sharing is key, as well as support and understanding, to ultimately bring more harmony into our ostomy life journey. I found here, virtually no ostomy questions that are not touched upon. Questions which some might feel, may be too trivial to contact a doctor about or even too shy or embarrassed to ask their own doctor about. They are all addressed here.

For me, anonymity was very helpful in seeking answers to each phase of this life changing medical and mental event. Sharing initial trauma feelings, ongoing support and finally acceptance was what I found with my membership here. I am not sure what my mental and physical attitude would be today without having found this site.

Additional benefits included: finding products and ideas to help with daily maintenance, innovative ideas and as a bonus - some great humor.
After all “laughter IS the best medicine”.

I have been a member for 3 years, an ostomate for 4 years - yes, I certainly wish I would have found it immediately after surgery but so very thankful I finally found it when I did as I truly believe it turned my troubled depression and situation into a more positive attitude and acceptance.

Sincerely,
An Ileostomate nicknamed Justbreathe 🫶🏼

infinitycastle52777
Aug 03, 2024 3:06 pm

You could try the Cera Plus wafer 11404; it is raised slightly for stomachs that are not flat. Also, try a ring that goes all the way around instead of the halfway ones. Put the ring on the wafer and press it down so that it goes to the edge of the circle, and then press it down around the wafer. These are two of the tricks I use and have had success with. Sorry you are having troubles.

Beachboy
Aug 03, 2024 5:49 pm

Do you have a colostomy or ileostomy?

Have you tried a convex wafer with an ostomy support belt? Most ostomy supply manufacturers offer free samples. They also have nurses who answer questions and offer advice. Look them up on the internet.

Amazon has lots of inexpensive support belts that apply pressure to the wafer. Wearing a belt should help maintain wafer seal integrity. You can also buy wafers and bags too... if you're short on supplies.

Ask your ostomy supply company the maximum amounts you can get with each order. Then max out your orders until you build up extra supplies. Your insurance should cover support belts too. I use Nu-Hope Corporation belts for my colostomy.

How far does your stoma stick out? If your stoma is close to skin level, it will cause problems.

infinitycastle52777
Aug 03, 2024 10:10 pm

That is an excellent suggestion about maxing out your supplies until you build up a supply. That is what I did, and now I have a closet shelf totally full of supplies. So if I ever had to change a bag before its time, I have plenty of supplies. For insurance, I had to ask my ostomy doctor to write the prescription for more than I needed. So she wrote me for 20 bags and 20 wafers a month, and I only change every 3 days. So I have amassed a good supply of extras. This is also good if my insurance ever changes. I will have time to plan for that.

 

Words of Encouragement from Ostomy Advocates I Hollister

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DeMaGo
Aug 03, 2024 10:50 pm

Hi,

I was using the full ring and had leaks underneath it. (The wafer around the stoma I might have cut a little too wide.) The skin around the stoma became irritated, so I used a barrier wipe and then the powder on the worst spots. (Mostly under the stoma) I switched to the paste, and putting it on the wafer wasn't too difficult. I have neuropathy in my fingertips, so I use gloves to help. I am able to take a bit of paste and apply it around my stoma to ensure a good seal. It's messy, but it helped, and the paste will fill in any dips and spaces.

Coming off, I find it is less sticky; the ring would leave back sticky spots. The paste wipes away better.

I have also used convex wafers that my stoma nurse ordered for me. They never leaked for me.

I use ostomydepot.ca for supplies here in Canada as I found them cheapest.

I have been lucky with the free supplies from the stoma nurse and Coloplast.ca. I keep extra stock of the various products. I'm still waiting on coverage.

I have an ileostomy and am using the Coloplast click system right now with the paste.

Desiree

 

 

Past Member
Aug 04, 2024 7:38 am

Hi. I'm sorry you're having so much trouble getting your ostomy bags to adhere. I can share the advice I got from the ostomy nurse at the hospital. She is fabulous! She said that the one-piece convex system is best for people who have uneven stomachs. They tend to leak a lot less than other systems. Also, make sure you're not cutting the hole for your stoma too large. It should fit pretty snugly around the stoma to adhere to and protect the skin around it. The stoma paste is essential, more important than using the wafers. I have found the wafers to cause more problems than they solve for my situation. The paste has been an absolute blessing! I just have to be careful not to use too much, and it does tend to soften in a hot shower so that the bag can spring a leak. It's just that using the paste is the only way I can get a bag to stay for 3 days. Finally, I use the belt that goes with my system. It locks in on either side and holds the bag more securely against my body. My insurance covers Coloplast and I've been pretty happy with it. I think my doctor wrote the prescription for the maximum amount of bags because I received four boxes in my first order, which would be enough to change every day or two. The ostomy nurse also hooked me up with extra supplies when I was hospitalized again last week for dehydration...she said never to use my own supplies when hospitalized; the hospital provides for everything I need. So now my stash is building nicely and I've only had my ostomy for 7 weeks! It's going to be 12 months of chemo before I can have my ostomy reversed, so I'm in this club for a while.