Managing Pain and Diarrhea After Multiple Surgeries

I had ileostomy surgery in 2023, my gallbladder removed in 2023, and the rest of my large intestine, rectum, anus, etc., in 2024. I contracted a serious infection (M. Abscessus) which is just clearing from the last surgery.

I've always had pain a few inches away from and around my stoma, especially on change days, no matter how gentle I am, but I've always been recovering. We're moving past that, but not the pain. I'm still limping at the end of change day. Now I am having major watery diarrhea and severe pain both around and sometimes as matter comes through the stoma, despite taking 8 Lomotil a day at my GI and surgeon's instructions. I see them next week. I'm not sure I can wait that long. It's so painful first thing in the morning, but especially at night when it drains so much despite the meds.

Doesn't feel like a partial block. Any other experiences?

I would recommend going to the emergency room. You are at risk of dehydration. You might benefit from a CT scan of the area causing pain. Constant pain is not normal.

Good luck and keep us posted.

Hi FA,

  Constant pain around the stoma can come from a couple different things.  The diarrhea may or may not be related.  I could go down a bunch of rabbit holes here, but it would make more sense to get scanned and have bloodwork done to see what your problem actually is.  I used to resist going to the ER when I was younger, but now I've crossed that line where I realize waiting usually makes things worse and I end up regretting it.  It always sucks, and wastes an entire day..........but it's the right thing to do when what's ailing you isn't obvious.  Hopefully you're not in a major city......but if you are then you best head down to the ER right now so you can get your number and wait in line.  

  Oh, as for the meds...........that doseage of Lomotil isn't that extreme.  With your colon removed (and probably part of your small bowel as well) you can expect things to be zipping through you at a good pace.  Without a gallbladder you'll need to avoid excess fat in your diet.........or that will speed things up even more.  You also need to know what and how to drink.  Once you find out where the pain is coming from and get that fixed you'll find that tailoring your diet to what bowels you have left will work wonders for you............to the point where you may not need any motility meds at all...........but no guarantees!

  Let us know what you find out!

;O)  

After five days in the hospital languishing, given Lomotil 8 times a day, more fiber supplements, and told I have neuropathy from all my surgeries. Glad to have an answer!

Might be a good idea, if possible, to get a second opinion.  Not a different doctor reviewing existing test results, but someone giving your case a fresh look.

Getting Support in the Ostomy Community with LeeAnne Hayden | Hollister