The Surprising Benefits of Fiber for Ileostomates

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Justbreathe
Nov 18, 2024 1:16 pm

 

Get your fiber! Ya ya whatever... yes, this was my bad (as in attitude). I believe this affliction (bad attitude) happened to me after having surgeries and extended hospital stays. One for a drainage tube, one for an ileostomy, a heart attack, followed by stent placement. Each stay resulted in talking heads directing me to get many prescriptions filled... one word for all these meds and directions... OVERWHELMING... Oh yes, I started out with good intentions to do as told, but it was short-lived. This resulted in failure to communicate and participate. Fortunately for me, with time, research, and this website... I improved.

The one thing I was told and disregarded was to take a fiber supplement daily. I think Metamucil was prescribed. When I
hear "take daily" in reference to meds, a switch turns off in my brain and the devil on my right shoulder makes the "humph" noise. That little devil immediately computed Metamucil as medication. Well, can I blame him? Not for a moment. As we both thought that "M" word taken daily was a medication for diarrhea. So, if output was watery, why would this be helpful? Well, the answer is - It's kinda like a thermos; it can keep things hot or keep things cold... "how do it know? Go ask Alice when she's 10 feet tall. Fiber regulates accordingly.

Anyway, the whole point of this post is to say, ileostomates may need fiber and it has been a game-changer for me. I use Kirkland Signature, a Costco product, which is comparable to Metamucil with orange flavor.

Keeping Bill Withers' wise advice to try my hand at "DIY," I attempted to make some gummy candy from my orange fiber powder. Thinking it would be a nice break from a smoothie. I am no Julia Child or Martha for that matter, and my recipe failed miserably, so it's back to the powder! Bottom (or bag) line is, I do not think it possible to do better than a morning smoothie... jb

infinitycastle52777
Nov 18, 2024 2:02 pm

I take a fiber supplement, but I take it in pill form. I take psyllium fiber. I really don't know what it does for me, but my doctor said to take it. I used to take Benefiber, but the pills are so big and hard to swallow, and they weren't any better than the psyllium, so I went back to psyllium. I still have watery output, especially at nighttime. So it hasn't done anything to thicken me up at night, at least. I take it three times a day with each meal.

Posted by: freedancer

In both of my cases, I had no choice. It was surgery or be put 6 feet under! I thank God that He has been with me all these times. Without Him, I never would have known what to do and might not have gone to the hospital when I did. I don't know if you have had your surgery or not yet but I hope you will hang out on this website when you are done. I have learned a great deal through the people here and it is so great having others who have had the same thing done and been through what you are about to or have gone through. The only thing I have turned down is a reversal of the ileostomy. When the doctors did the emergency rebuilding of my original ileostomy this last February, I told them I did not want to go through this again. My doctor told me at that time that I was no longer a candidate for the reversal. In a way, I was very relieved. The last three years of my life have been a nightmare for me. I do not want to go through any of it again. If you wish to be rehooked up and they say you are a good choice for that, research it carefully. Every surgery I have ever had except for Old and New Maxine and the emergency surgery on my broken foot, I have spent weeks researching. I recently had my C5 C6 disk in my neck replaced with an artificial one. I went to my pre-op with 2 pages of questions for the doctor. I knew everything that they were going to do and could talk intelligently with them. I always try to research my adversaries! Don't cancel your surgery. It is nice not to have to suffer any longer with horrible pain. We all had to change a few things around when we had our surgeries but in the long run, most of us are glad we did it. I know I am. Good luck to you!

kittybou
Nov 18, 2024 2:53 pm

Tried Cheerios? No brand name. Nighttime snack.

Justbreathe
Nov 18, 2024 3:24 pm

Thanks! I eat them almost daily - love them… as a snack when we were young (that would be many moons ago) and funds were limited in a family with four kids, we would fry them in butter. Yum, almost as good as popcorn - and hey, thanks for reminding me - what a great snack when popcorn cravings come around (don't like the husk shells). 🫶🏼 jb

HenryM
Nov 18, 2024 3:27 pm

Interesting.  I've previously noticed that Honeynut Cheerios thicken me up when taken as a snack (sans milk).  

 

Staying Hydrated with an Ostomy with LeeAnne Hayden | Hollister

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Justbreathe
Nov 18, 2024 3:28 pm

Wondering why you take it in pill form... I cannot take pills - they just rush right through my belly and bounce into my bag in full form... You might want to try the powder form; it makes a huge difference in my output. Just a suggestion. Costco has the best deal, but my Costco only has it with orange flavor - good thing though, I like orange. jb

SusanT
Nov 18, 2024 8:07 pm

I take benefiber but I have it in powder form. Put a couple tablespoons in my morning coffee (sadly decaf) and I'm done. It's tasteless and not like taking medicine or a pill. 

I think we get the flavorless benefiber from Sams. 

infinitycastle52777
Nov 18, 2024 9:46 pm

I don't have a problem with the pills; they don't come out in my bag or anything. The only pill that ever came out in my bag was gel caps of fish oil. They came out in my bag all the time. Gel caps are not for me.

TerryLT
Nov 18, 2024 9:53 pm

Hi guys,  FYI, psyllium fiber is Metamucil, ie, Metamucil is just a brand name for psyllium fiber.  I think you can even get psyllium fiber in a gummy, if I'm not mistaken, but I don't know what brand makes it.  

Terry

infinitycastle52777
Nov 19, 2024 12:22 am

My mom takes fiber gummies. I am always worried about the sugar in it. I avoid sugar if I can. Added extra sugar. Also not sure how a gummy would digest with my ostomy.

infinitycastle52777
Nov 19, 2024 6:48 pm

I don't eat fried anything. I don't want to deal with the results of that. Not a healthy thing anyway. I am about health as much as I can be. 

SusanT
Nov 20, 2024 3:33 am

Grilled is not fried. True grilling is a healthy way to fix food because the fat drips down into the flames or a collection tray.

Frying involves heating the food along with oil or fat. The food absorbs some of the fat.

My husband was a chef; I get constant lectures on food prep... Looks like I've picked up the habit. Next thing you know, someone will say we look the same...

Bilbo baggins
Nov 24, 2024 5:58 pm

I have 3 or 4 dry crackers with a glass of wine around an hour before bed time and find it firms things up quite well. I must add that I also take 2 loperamide along with the crackers