Ileostomy Revision Concerns: Increased Activity and Watery Output

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78
christianp
Jun 01, 2025 4:59 pm

Hello

I had a hernia repair and revision of my ileostomy due to a kink in the ileum 2 weeks ago.

Since then, my output has generally returned to a usual porridge-like consistency, except for the last couple of days. As soon as I start eating, the stoma becomes very noisy and active, and the output goes very watery and fills quickly. Yesterday, this lasted for hours. It's very different from how the ileostomy acted before the revision surgery. They only removed about 10 cm of ileum. Why would this change be happening?

They also prescribed loperamide to take twice a day long term, whereas before the revision, I was on nothing. Again, why would this be the case when they've only removed 10 cm from a 350 cm ileum? Surely my output wouldn't be affected that much?

Thanks

corlsharonl49
Jun 01, 2025 7:56 pm

Our bodies can be that sensitive. My first stoma was a dream. However, the attempted reversal failed, and back came the ileostomy; however, the output was always a lot more liquid, and I was super sensitive to foods I could eat before. I went to a nutritionist to see what was going on, and she said psyllium (not sure how to spell) may have been damaged and may have needed more time.

I am thankful for the loperamide, as it helps me a ton. So do many other things I've learned here. Do whatever you can to help yourself, and of course, it's wonderful trial and error.

Make sure you get as much variety as you can in food and drink. I take loperamide 3 times a day and plan very specific times religiously. Most importantly, stay hydrated. Nuun tablets work for me in water, and I can even enjoy just a little coffee.

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warrior
Jun 01, 2025 8:44 pm

Is what you have called short bowel syndrome? Removing that part of the ileum controls flow for us ileos. Without it, you're talking Niagara Falls.

Imodium will help you.

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