Ileostomy Revision Concerns: Increased Activity and Watery Output

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223
christianp
Jun 01, 2025 4:59 pm

Hello

I had a hernia repair and revision of my ileostomy due to a kink in the ileum 2 weeks ago.

Since then, my output has generally returned to a usual porridge-like consistency, except for the last couple of days. As soon as I start eating, the stoma becomes very noisy and active, and the output goes very watery and fills quickly. Yesterday, this lasted for hours. It's very different from how the ileostomy acted before the revision surgery. They only removed about 10 cm of ileum. Why would this change be happening?

They also prescribed loperamide to take twice a day long term, whereas before the revision, I was on nothing. Again, why would this be the case when they've only removed 10 cm from a 350 cm ileum? Surely my output wouldn't be affected that much?

Thanks

corlsharonl49
Jun 01, 2025 7:56 pm

Our bodies can be that sensitive. My first stoma was a dream. However, the attempted reversal failed, and back came the ileostomy; however, the output was always a lot more liquid, and I was super sensitive to foods I could eat before. I went to a nutritionist to see what was going on, and she said psyllium (not sure how to spell) may have been damaged and may have needed more time.

I am thankful for the loperamide, as it helps me a ton. So do many other things I've learned here. Do whatever you can to help yourself, and of course, it's wonderful trial and error.

Make sure you get as much variety as you can in food and drink. I take loperamide 3 times a day and plan very specific times religiously. Most importantly, stay hydrated. Nuun tablets work for me in water, and I can even enjoy just a little coffee.

Posted by: Karen & Stella
Fay,

I am one of those few people who still have a lot of output at night. However, I suffer from short gut syndrome after seven bowel surgeries that led to the loss of much of my small intestine as well as my large intestine from the initial bowel cancer surgery. It does get better over time as your system adjusts, but an ileostomy can be a challenging adjustment. It's important to connect with a good Enterostomal Nurse - ET nurses who can help you problem-solve over time. It's been five years since my initial surgery, and I had a great visit with a new ET nurse in December. He really helped me with the problem of high output at night. I had been getting up every 90-120 minutes to empty my high output bag because of filling. If I slept for three hours without emptying, I would have problems. My ET nurse helped my husband and me make a nighttime collection system using a Rubbermaid juice container with a handle and my old CPAP hose. This is connected to one of my two-piece high output bags and allows for continual drainage. It isn't pretty, but it has been a real lifesaver. I guess the real message I want to share is to stick with it, find a nurse who you can work with, and together you will find solutions to whatever challenges you face. This website is also an important support for me and others. There is nothing you will go through that others haven't already faced and figured out. There is so much wisdom here. Read the materials they've put together for newbies. There are a lot of great suggestions to use. I hope things get better quickly for you.
Karen
warrior
Jun 01, 2025 8:44 pm

Is what you have called short bowel syndrome? Removing that part of the ileum controls flow for us ileos. Without it, you're talking Niagara Falls.

Imodium will help you.