Increased Mucus Frequency with Ileostomy: Seeking Advice

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244
smurflv1
Jun 03, 2025 9:45 pm

I've had an ileostomy for 4 years. Still have some colon left, though. I've always had mucus, but only first thing in the am, maybe 2-3 times, and then nothing until the next morning. 3 days ago, I had mucus at 11 pm at night, which has never happened. Then yesterday, it was every 4 hours until bedtime, and today it's every 2-3 hours. I've had clear mucus and sometimes tinged with blood for the last 4 years, and this is the same except for a bit more blood than usual. I feel fine - no temp - no discomfort, but I'm still planning to call my Dr. tomorrow. Has anyone ever had this happen?

SusanT
Jun 04, 2025 3:12 am

Definitely call your doctor. I've not had this, but it doesn't sound good.

IGGIE
Jun 04, 2025 3:31 am

Follow Susan's advice.

IGGIE

Posted by: Nini4

Well,  I  hit the two year mark. I went back and read my posts from when I first found this site. I was very fortunate in that I stumbled upon it only 4 weeks post op. I have said many times that this community really saved me. The first 2 weeks after my surgery I shut down completely. It wasn't until about the 3rd week that my son came in to my room, flicked on the light and told me I was going to have to get back to living because I was scaring him. I had fallen into such a depression.  He  ticked me off,  but it also made me stop and think- what was I going to do? Feel sorry for myself and sulk, or be grateful I was alive. 

I've re-read my journals from that time and it was after my son kicked my butt, so to speak, I took an honest inventory and had to dig deeper than I've ever had to. I mean, I had survived a pretty nasty divorce, after a pretty crappy marriage and that was tough. But this was different. I felt like I was now a handicapped person who would be limited in their life and be looked at as a freak. My mental state was precarious, at best. 

But then I found this site. I just lurked a bit before posting. I read so many of the other stories and I started to see just how full my life can be, I was not handicapped,  and certainly not a freak! The stories of survival, the sense of humor, the support and compassion was inspiring.  It was then I made myself get out of the dark, and get my sh*t together.  

Not all rainbows and sunshine at first, hardly! But with grace from myself - to myself, and the kindness and willingness of the folks here to be supportive, non judgemental and openly share intimate details about their life circumstances,  l not only survived but thrived. 

I think of all the years I had suffered with such extreme pain, barely functioning,  and the many hospital stays and how that is all behind me now.  (All fingers, toes, and legs crossed that I never have to go near a hospital for myself ever again. I think I'd rather have a fork stuck in my eye. I loathe every about them.)  

So, to everyone who has been a part of this journey with me, to say thank you is not enough. I'm forever grateful to know you all.  My Angels, each one of you. 

 And as the Grateful Dead famously said,

"what a long strange trip it's been!"

Im so happy I'm tripping with you all.


Axl
Jun 04, 2025 1:03 pm

I have had similar; my doctor said not to be alarmed if you get a trace of blood now and then, as it's very delicate in there since what's usually in there isn't there to absorb these things. But as usual, run any concerns past your professionals for your own peace of mind.

infinitycastle52777
Jun 04, 2025 5:36 pm

If you are having more blood than you usually do, I'd run it by a doctor. You don't want to mess around with bleeding.

 

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