I'm only getting 24 hours or less wear time with my appliance. My flange just doesn't seem to stick to my skin. I've tried 10+ different flanges from all three companies with no success. I also have a major problem with odor, and have tried putting breath mints in my pouch and also the Coloplast deodorant liquid with no help. My stoma is retracted at 6 o'clock and therefore I've used a convex flange but even tried a flat flange in efforts to solve this problem. I really don't want to face surgery again to have my stoma pulled out more. Has anyone had a stoma revision and was it as bad as a resection? My ET nurse has tried all her tricks and I'm awaiting a new referral to a gastro.
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Posted by: iMacG5
Hi Crossley. Ya know, I think it’s all about feelings. I don’t mean the pain feelings which could control everything. I mean the feelings inside our heads, our hearts and even our souls. I mean the feelings of who we are now compared to who we were; how we accept our situation or maybe we don’t. My wife asked how I felt and I said, “like crap”. She asked what hurt and I answered, “Nothing hurts, well, everything hurts, I don’t know, It all sucks.” That was a long time ago. You question if your feelings are normal. How normal is it to relocate your butt hole to your belly where it’s usually in the way of your belt and, you know. But that’s where we are and for lots of us we are so much better off than we were before, physically. Emotionally, psychologically, well, that might be a different story. I believe talk therapy is wonderful if we could find a real empathic or sympathetic listener. So guess what! I found MAO and began “talking” with a keyboard with some of the wisest, kindest most sympathetic and compassionate folks on the planet. Regardless of where we’ve been, lots of folks here have been there and worse places and found their way back healthier and happier. We really do help each other.
Keep “talking”,
Mike
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Hollister
Living with an ostomy doesn’t mean you have to live with stoma fluid leakage or skin irritation.
Learn how convex skin barriers work and what benefits they offer.
Learn how convex skin barriers work and what benefits they offer.
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Hollister
A convex ostomy skin barrier can help prevent output leakage and skin issues. Unfortunately, some misconceptions about convexity may keep people with ostomies from using it.
Learn about convexity and 4 myths surrounding it.
Learn about convexity and 4 myths surrounding it.


