Advice Needed For Upcoming Surgery And Recovery

Advice Needed for Upcoming Surgery and Recovery

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Rabbit

Dec 17, 2011 3:32 am

There are so many stories here, I'm well aware that I'm one of the luckier ones. A benin lump turned out to be endometriosis and my colon was disintegrated and couldn't be connected.

Now I seem to be ready for a reconnection after one colon specialist 6 months ago said I had to loose weight first, a second thinks that not realistic. The tricky part is the blood in the anal mucus that always correlates to my period. The scope indicates Diversion Proctitis (lack of use) but given what started it all- well I'm nervous they'll go in and can't reconnect. The plan is a hysterectomy at the same time given my uterus is the size of a grapefruit and clearly misbehaving- but given two c-sections and uterine abladeration that stopped some wild crazy bleeding, it's not too surprising. I wish I could wait for menopause - but that will not likely happen in the near future as hormone treatments can't even stop it.

2 QUESTIONS-

-- What do you suggest or recommend I do to prepare for such a surgery?

-- After the surgery, what do you suggest or recommend I be prepared for?

Any advice or insight would be greatly appreciated and put to good use.

Thank you,
Rabbit

spyder

Sep 11, 2019 4:11 pm

my reversal was a disaster causing me to spend many hours on the loo and surprises went back to poop bsg,

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Posted by: w30bob

Hi gang,

I was thinking what a great resource this site has been for me since I found it. It would have been really helpful, but maybe a bit scary, to have found it before my ostomy, but that's water under the bridge. But I got thinking about it, and now I'm questioning why doctors and hospitals don't provide this site's contact info to any patient even considering an ostomy today. And how can we change that so potential ostomates can learn about the road ahead for them by getting on here and asking questions before the docs go chop-chop. How exactly do you get all hospitals to provide their patients specific information, like this website?

I just happened to find this site something like 4 years after my ostomy when I Googled "ostomy forum" or something like that. But I never found it during previous searches.....so I found this site pretty much by pure luck. We need to find a way to make this site available to new or soon-to-be ostomates......as that's when we really need to commiserate with fellow ostomates. Anybody have any thoughts on how we do this?

Thanks,

Bob