Seeking Surgeon For Urostomy Conversion And Reconstruction

Spiritual Living

Jun 23, 2009 3:04 am

I was born with an extrophy of the bladder in '64 and have had my urostomy since '71. I'm looking for a specialist who could convert my urostomy into a continent diversion like Sweede's. I'd ultimately like to get rid of old scar tissue and also get vaginal reconstruction due to my condition. Where could surgeoens all do this? Could it be covered on insurance in the USA? Could I be a candidate if I have 3rd stage kidney disease and a history of kidney stones due to recurring UTI infections?
I believe in miracles! Thanks for any info you can provide!!!

eddie

Jun 27, 2009 5:47 am

I,m sorry I don't know have you tried Duke? I took the liberty of reading our profile, and have to say what jerks!
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No one derserves that I truly believe that true love is unconditional, I pray that you find a pardner who will accept and love you just as you are I am a nurse and I know that everyones appearence can be changed amost completly in a matter of minutes, fire, MVI's, gunshots etc. None of us know what physical changes we may have to endure until our time is ended.
Eddie

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Posted by: JD90

I am scheduled for my reversal on 12/4. All my pre-admin stuff is completed and my GI signed off on the clearance letter this morning. I am super excited and looking forward to not having a bag. I just hope all goes well and heals well so I don't wake up with a temp bag which will lead to yet another surgery.

I have learned a lot from this website and will continue to be on here even after surgery. To all the ostomates out there, keep your heads up and keep pressing forward. We all have good and bad days. Best of luck to you all.

I will be sure to post my progress after surgery. I'm praying for you all.

Spiritual Living

Jul 13, 2009 7:25 pm

I was born with an extrophy of the bladder in '64 and have had my urostomy since '71. I'm looking for a specialist who could convert my urostomy into a continent diversion such as the Miami, Indiana or Kock pouches. I'd ultimately like to get rid of old scar tissue and also get vaginal reconstruction due to my condition. Where could I find skilled, compitent surgeons to do all this without giving me excuses like: "You have too many adhesions inside! You're fine! It's too much of a risk!"? I know it can be covered by insurance, because with the ileal conduit, I'm getting too much reflux which is damaging my kidneys & I need help FAST! I need to find a surgeon & nephrologists who won't be aftraid to operate on a healthy, 125lb, 5'3" female candidate who's had 3rd stage kidney disease and a history of kidney stones due to recurring UTI infections?
I believe in miracles! Thanks for any info you can provide, Dr. Phil!!!

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Seeking Surgeon for Urostomy Conversion and Reconstruction