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Fistula on stoma...

Past Member
Posted by Past Member, on Mon Mar 26, 2012 3:10 am
Hi all, hope everyone is doing well. Have been a member on here for a while but not been as active. But always check in and must say this is a great website with great people. Just renewed the membership.

Anyway, does anyone have or have had a peristomal fistula, ie a fistula between the stoma as it comes out and the edge of the stomach. I have one and I can see stuff leaking out from there. Thankfully it all goes into the bag along with the rest! Its not causing me problems at the moment with the bag, ie no leakage issues etc. It been there for a while and my meds have not sorted it, which is Methotrexate. Have stopped taking Methotrexate towards the end of 2010 anyway as it was losing its effect.

Does anyone else have similar issues?

By the way, I have had crohns for about 20 years.

Thanks guys.
Reply by three, on Mon Mar 26, 2012 1:25 pm
Hi Sunnie ~ there's a member (Gus) from Australia who last year posted a picture of the two fistulas he has close to his stoma. He is knowledgable about many things related to ostomies, and he is studying to work in healthcare.
Reply by aapplet, on Tue Mar 27, 2012 2:19 am
Hi Sunnie,
I too have a fistula next to my stoma, and have had it for about 5 years now.  I did have some issues in the beginning and still do occasionally as it sometimes gets blocked, but for the most part it is okay.  I have to use cut to fit flanges, which is sometimes a pain, especially if you have an accident and have to spend the extra time cutting away a little notch for the fistula.  I don't know if it will ever heal, so I just deal with it as it could be alot worse.  So you are not alone out there!!  Good Luck!
Past Member
Reply by Past Member, on Tue Mar 27, 2012 4:51 pm
Thanks for the replies and reassurance. I have had the fistula for about 2 years as far as I rememeber. Its not giving any problems so thats ok. I hope they heal eventually, will see Smile Take care guys.
Reply by WOUNDED DOE, on Thu Mar 29, 2012 1:17 pm
I have had problems with something similiar in the past and they were taken care of surgically and for me was the better route to go....I have Crohn's too......there is something new these days that many Doctors are trying on patients called LDN and it is SO much safer than the other drugs out there being used and has a wonderful helpful affect on Crohn's issues among MANY other medical issues .....just a head up for you all Smile  I will post a link if anyone would like to see what I'm talking about.....I have come in contact personally with so many friends who have gone on the LDN and it has improved their lives in so many ways SmileSmile    Good luck to each of you!

http://www.lowdosenaltrexone.org/
Past Member
Reply by Past Member, on Fri Mar 30, 2012 4:18 am
Thanks Doe, I saw my surgeon a couple weeks ago and he might me re-siting the stoma and he said he will take care of it then. As I said, it not giving me problems at the moment so I am no hurry to fix it. I think you are right though, that is the better way to go generally for this.

I was just reading about LDN a couple of days as it happens from a link someone had put on a Crohns facebook group page. It seemed ineteresting...Do you take it at the moment? Is it making any difference to you?

There have been trials of LDN for Crohns and it looks like it does have an effect and does improve the disease in moderate to severe form.

Did you take it after consulting with a specialist, your Gasterenterologist or whoever??

Thanks again.
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