About 8 months ago, I (ilostomy '09, proctectomy '11) started hgaving some intermittent, occasional pain to the right of my ostomy (about 1 to 1.5 inches from the stoma).
Saw GP who seemed to ask the right questions and said it was probably muscle related (ostomy working fine). I had had a particularly active few months ... so with my poor abdominal strength/muscles, his diagnosis seemed to fit.
Slowly got worse. Pain is worse (knife like) and now hurts with any movement. Sitting or laying down ... no pain. When I press on the painful area, it hurts. If I continue to move around do stuff ... the whole area gets sore to the point where pressing down (to click in a new pouch) hurts like the dickens. Wasn't like that 8 months ago.
Saw GP again last week ... he says it's most probably scar tissue ... which can develop and cause problems long after the surgery. And said there's not much you can do about it (excect surgery once again in bad cases).
Anyone else suffering from this? Did you have any tests/procedures to confirm that it is indeed scar tissue causing the problem. How do we know there isn't another problem?
This is definitely cramping my style and activities . Seriously though, the pain level is something that I won't be able to deal with on a 'forever' basis. And I hate not being able to do stuff.
Any thoughts/suggestions appreciated.