How does a person adjust with an ileostomy?
I've had this over a year now and it doesn't seem to get better. I think sometimes how I'd love to be the person I was before. I do have a chance of reversal but I'm so scared to go through this again. When I had this surgery, which was a result from a small bowel obstruction and a burst appendix, I remember how I had to regain my walking skills again and I couldn't eat without being sick to my stomach. Also had a blood clot to right lung. I had therapy for 4 months to finally walk again and be a little of who I was. I couldn't work in the medical field anymore which made my life difficult. My daughter had to take care of me the first 6 months of this illness. Then my insurance capped out. I just don't want to put family in a burden again with me and I'm also afraid of surgery again. But I don't want to live this way also. I think about people who can't have it reversed and then I think I am a lucky one to be able and try to have it done. I am getting married in October of this year, to a wonderful and understanding man who says it doesn't matter one way or another if I have the surgery. But I don't want to be a burden on him, if things don't go the way they should. Yes I'm in a bind with all these mixed up feelings. I don't know if I could live this way the rest of my life and I don't know if I can face another surgery and be helpless for awhile.
Why Join MeetAnOstoMate?
First off, this is a pretty cool site with 33,611 members. Get inside and you will see.
It's not all about ostomy. Everything is being discussed.
Many come here for advice or to give advice 🗣, others have found good friends 🤗, and there are also those who have found love 💓. Most of all, people are honest and truly care.
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Create an account and you will be amazed.
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Hollister
We sat down with two influential people in the ostomy community, to find out how they cope during challenging times.
Read what they had to say.
Read what they had to say.
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Hollister
We conducted a survey to better understand the impact that living with an ostomy has on sleep.
Learn the results of our ostomy sleep survey.
Learn the results of our ostomy sleep survey.