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What do you do about ostomy gas in public places/situations?

Posts:10
 
Hi, I've had an ileostomy for a little over a year now. I'm a NHL cancer survivor so I acquired mine for reasons different than most and all this time I haven't been working or in school so when my bag makes noise usually whoever I'm around knows what's going on but since I will be going back to school this fall I am nervous about my bag making noise. I've been embarrassed at church and at a small birthday gathering too. I'm really excited to be going back to school but its bittersweet because I have so much anxiety about my bag embarrassing me.

I thought maybe it would be a good idea to ask the professor if I could just tell the class about it upfront but I don't know. What do you think? Also, if you have any eating habits that would result in a less noisy bag during my classes I'd really appreciate it. Thanks!
 
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Posts:59
 
HI, CONGRATULATIONS ON BEING AN NHL SURVIVOR!!! I ALSO HAVE AN ILEOSTOMY FOR 4 YEARS AND HARDLY HAVE ANY MORE PROBLEMS WITH EXCESSIVE GAS DURING THE DAYTIME. WHEN IT WAS NEWER TO ME, I HAD A LOT OF GAS THAT WOULD MAKE NOISE. AS I GET MORE 'SEASONED', IT NO LONGER DOES THAT. WHEN IT DID, I JUST PUT MY FINGER OVER THE BAG (ACTUAL STOMA OPENING) AND THAT SEEMED TO STOP IT FROM MAKING NOISE. OF COURSE, IT'S LIKE HOLDING IN A "FART" BECAUSE IT'S NATURAL TO PAS GAS. ALSO SOME FOODS WILL CAUSE MORE GAS THAN OTHERS AND I THINK THEY'RE ALSO GAS-PRODUCERS FOR REGULAR FOLKS, TOO: BEER, CARBONATED DRINKS (SODA'S), BEANS, CABBAGE, CAULIFLOWER, ONIONS, BROCCOLI...SOME PEOPLE ALSO HAVE PROBLEMS WITH DAIRY, CHEWING GUM (SWALLOW EXCESSIVE AIR), RADISHES, SOY PRODUCTS AND NUTS, TOO. SO AS YOU CAN SEE, SOME PEOPLE HAVE MORE TROUBLE WITH THE FOODS LISTED ABOVE - AND PEOPLE LIKE ME HAVE NO TROUBLE WITH GAS NO MATTER WHAT I EAT (EVEN FRESH SALADS & ALL OF THE STEAMED VEGETABLES THAT I WANT). I ONLY SEEM TO HAVE GAS WHILE SLEEPING WHEN MY BAG BALLOONS TO THE POINT THAT I EITHER HAVE TO "BURP" IT OR EMPTY THE CONTENTS (ALONG WITH EXCESSIVE GAS). I DO THIS ONCE EVERY NIGHT BECAUSE THE "BALLOON" WAKES ME UP. I HOPE SOME OF THIS INFORMATION HELPS.  TRICIA
Posts:10
 
Thanks a lot Tricia! I've been trying to watch my diet more closely. I'll keep in mind the foods you mentioned. =)
Posts:132
 
I don't think that I would share with the class. There is a web site called ostomysecrets that sells wraps with an inner pouch to tuck your bag in. Helps to keep your bag flattened out really well & may give you alot of confidence - it has for me! The wrap will help to muffle the noise too. I think it is awesome that you are going back to school!!! Mooza who is one of us on here eats a marshmallow before she changes her bag to quiet down her stoma - might help you!!!
Posts:10
 
Thanks a lot! I'm gonna check out that website and maybe buy some marshmallows ^_^.
Msj
Posts:8
 
Hello, I am new to the forum,
I have had my permanent ileostomy since the age of 3 years old from cancer (Rhabdomysarcoma), I will be 46 in December. I can tell you some stories about my ile and yes i have been in plenty of situations that I did not know how I would get out of, but I learned from it. I learned the ins and outs of my bag. Even though I LOVE TO EAT, there are certain foods that can cause gas, certain foods with me that cause diahhera. I try to stay away from that. What I like about my pouch is it has a gas filter, so that gas does not escape. No it does not stop the noise, but I can kinda put my hand over my pouch and press a little, so noise is not to bad,but I really don't have problem with noise.. And what helps is forums like this. Other ostimates have so much information. I choose not to let my health conidtions stop my passions. I have been a fashion model for 15 years, I am a writer, motivational speaker. ONLY limitations put on us is by us. Keep yourhead up. I am here..

Msj
Posts:10
 
Wow, thank you so much Msj, those are words to reflect on. =)
Msj
Posts:8
 
Your very welcome
Posts:91
 
smileafayce
Please take care in eating marshmallows. Too many causes the out put to slow down. As a rule one tends to eat them to stop the output when changing the bag not to stop any noise.
Best tip, as other have said is putting your hand over your stoma as you can soften the gas noise better.
I found that marshmallows make a frothy sound as the out put comes out. Which doesn't help with any gas that may come out on and off throughout the day.
Perhaps a noisy bracelet or a few bangles together I find helps too. You can then move your hand to dull the stoma noise.
Well done to you for getting your self back out there.
Posts:10
 
Sorry I'm so late, but thank you for the caution on marshmallows. =)
Posts:91
 
smileafayce,
That's ok better late than never. How are you getting on with going back to work?
Do hope your stoma is starting to settled down although it does take some time.
Gee07
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