I am very new to this site, so this is a first for me. I have had Crohns disease since 2006, was diagnosed after an extremely tragic event in my life so lets just say I don't handle stress all that well. I had my colostomy surgery in 2010 and unfortunately I only had a short reprieve from the Crohns symptoms. I am currently not on any treatment for the Crohns as I do not have health insurance and in the past either the medications have not worked or I have had a bad reaction to them. I have been told that I have severe fistulizing Crohns disease and the only treatment I have been offered is more surgery. So that is some of my background. Lately I have been experiencing episodes of very foul burps and alot of gas in my stomach. Within hours of this starting I get severe diarrhea and cramping in my stomach so bad that I can't get up off my bed. Has anyone experienced anything similar to this and does anyone know what could be causing it? Any ideas would be greatly appreciated!
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Justbreathe
MeetAnOstoMate website turned out to be a lifesaver for me. I say this because, for me, this ostomy journey was a devastating event both physically and mentally.
Here, I found folks who understood my feelings even better than my family or friends could. Only a fellow ostomate can understand how you really feel.
Information sharing is key, as well as support and understanding, to ultimately bring more harmony into our ostomy life journey. I found here, virtually no ostomy questions that are not touched upon. Questions which some might feel, may be too trivial to contact a doctor about or even too shy or embarrassed to ask their own doctor about. They are all addressed here.
For me, anonymity was very helpful in seeking answers to each phase of this life changing medical and mental event. Sharing initial trauma feelings, ongoing support and finally acceptance was what I found with my membership here. I am not sure what my mental and physical attitude would be today without having found this site.
Additional benefits included: finding products and ideas to help with daily maintenance, innovative ideas and as a bonus - some great humor.
After all “laughter IS the best medicine”.
I have been a member for 3 years, an ostomate for 4 years - yes, I certainly wish I would have found it immediately after surgery but so very thankful I finally found it when I did as I truly believe it turned my troubled depression and situation into a more positive attitude and acceptance.
Sincerely,
An Ileostomate nicknamed Justbreathe 🫶🏼
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Hollister
In addition to your pouching system, you may require the use of an ostomy accessory to enhance the performance of your system.
Learn more about ostomy accessories, and when to use them.
Learn more about ostomy accessories, and when to use them.


