Urostomy Leaks Daily: Seeking Effective Solutions

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3716
lindielou
Apr 08, 2013 2:43 am
Hi,
I had a colostomy in July and my urostomy  in October. My urostomy leaks several times a day Spending a small fortune in supplies, tried adapt past different rings nothing has worked. I really want my life back Any suggestion would be welcomed, thanks, Linda
iMacG5
Apr 09, 2013 7:55 pm
Hi Linda. I know nothing about urostomies but will try to offer some help. You're not having any problem with the colostomy appliance, so let's try to figure out what's different. I'm guessing liquid is getting under the wafer. I can only suggest a couple of things like making sure the skin is completely dry before applying the wafer. If there's any space between the stoma and the wafer, eliminate it with an Eakin seal. Beyond that, an ostomy nurse would probably fix this up immediately. Good luck and post again if you need help.
Sincerely,
Mike
Posted by: w30bob

Hi gang,

I was thinking what a great resource this site has been for me since I found it. It would have been really helpful, but maybe a bit scary, to have found it before my ostomy, but that's water under the bridge. But I got thinking about it, and now I'm questioning why doctors and hospitals don't provide this site's contact info to any patient even considering an ostomy today. And how can we change that so potential ostomates can learn about the road ahead for them by getting on here and asking questions before the docs go chop-chop. How exactly do you get all hospitals to provide their patients specific information, like this website?

I just happened to find this site something like 4 years after my ostomy when I Googled "ostomy forum" or something like that. But I never found it during previous searches.....so I found this site pretty much by pure luck. We need to find a way to make this site available to new or soon-to-be ostomates......as that's when we really need to commiserate with fellow ostomates. Anybody have any thoughts on how we do this?

Thanks,

Bob

iMacG5
Apr 09, 2013 8:01 pm
I forgot to suggest heating the wafer (and the Eakin seal) with a hair dryer.
Mike
Katykiah
Apr 11, 2013 8:35 pm
Hi I had mine August 2012have had nothing but trouble with I have had so many different pouches it's quite got another yesterday it's sticks to skin and held with a belt I also have a hernia the last 3 days I have had terrible pain inthe top of my stomach any suggestions I am new to this  so any info would be helpful I have stopped going out since a good while as I am afraid people can smell it or it leaks as it does very often thanks kk
iMacG5
Apr 12, 2013 4:36 pm
You might try a website that's more specific to your needs.


http://treato.com/Colostomy,Spina+Bifida/?a=s  is one .


Wishing you the best,
Mike
 

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