Living with an Ileostomy Due to Severe Colonic Inertia

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tknight1
Sep 22, 2013 3:43 am
I will live with my ileostomy the rest of my life. I had a operation in June 2012 to try to get my colon to work. However, I had to have an emergency ileostomy. A year later my doctor tried the reversal with the J pouch but unfortunately it did not work. He had to go back and put in another ileostomy. He said I have thwart worst case of colonic inertia he has ever seen in his practice. I was wondering if any one else has an ileostomy due to this problem. I have good days and bad days. Also, some of my relatives make me feel that I will never date again due to my ileostomy.
iMacG5
Sep 24, 2013 3:50 pm

Hi tk. Sorry you didn't get any responses yet, but there are lots of folks just like you and they're probably interested in discussing with you. How about posting a similar message in the "Intimacy and Dating" section? I know nothing about ileostomies and less about dating. I've been with the same woman for about 55 years. We're still in love, and you'll probably find a similar relationship down the road.
Wish you well,
Mike

Bill

I’d like to write a nice review
that might express something quite new.
Then I read previous points of view,
which said the things I wanted to.
I would endorse the things I’ve read
about what other folks have said,
for these are the benefits and things
that joining a site like this can bring.
When I was an initiate, (novice)
it seemed to be appropriate
to express myself in rhyme
as this is how I spend my time.
When contemplating what to write
with contributing to this site,
it seemed to me, my ostomy
could be expressed in poetry.
Thus, when I had something to say,
a rhyme, for me seemed the best way,
for rhymes can often capture stuff
that prose don’t capture quite enough.
I do appreciate the way,
this site lets people have their say
in whatever mode they will
about the things that make them ill.
There are not many forums for
discussing stuff most folks abhor.
So, this site fulfils a small niche,
where angst and problems can unleash.
Where raw emotions can decant,
so, folks feel free to have a rant,
and we can all associate
is something I appreciate.
                           B. Withers 2021

Juuust_James
Sep 25, 2013 1:14 am
I used to chat with a Lady in Australia with an Ostomy that had a very rare condition where she was born without one of the vital nerves that runs through you entire bowel that aids in the expansion and contraction of the intestine to help push food thru and digest. the poor dear had a very limited menu of foods that would not give her blockages.
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As for your relatives -dont listen to them and let them pull your down as far as dating! -it took me quite a few yrs to get up the courage to date again after my surgery 17 + yrs ago, but since then I've been 3 relationships, and none of the ladies had any problem with my ostomy what so ever. I ended all 3 relationships. I found that once i could see that they didnt have a problem with my bag -then i no longer had any feeling of inadequacies about it.
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i've spoke to many people over the past 10 yrs in serious relationships and even marriages, and they all say the same thing "my husband (or wife) doesn't have a problem with my bag - I DO" -so once you get past that feeling of being different or less of a person then you life can and will be just as it was before you operation.
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