I had a hernia repair around my ileostomy in Oct. 2013 and again in July 2014 along with a revision from the left side to the right. Ever since 1986 I have been a patient at Walter Reed Hospital, now known as WRNNMC. My husband is a retired former Marine. I have healed and am doing great except for this gnawing burning sensation on the right side. It is located outside the perimeter of the stoma wafer between the two laproscopic scars where initially in 2013 they tried a lap before they encountered too many scar adhesions to proceed. So they did the big ol gut cut! I could say it it around the 10:00 Mark on a clock. It is extremely uncomfortable. Sick of seeing docs! Last week when I did see my gastrointerlologist last Tues and they have no idea what I'm talking about. Has anyone else had this? What is it? I will not submit to surgery again as each of the two I had in this past year left my "Mary" with creases that would not accommodate any wafer. Am doing great now ostomy wise! HELP!!!
Hi Skidder
I talked with you awhile back.The Lyrica did not work for the pain, going to see surgeon on the 23rd of this month. are you still having the pain from the hip to the stoma? I'm still having the pain also.
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Hi gang,
I was thinking what a great resource this site has been for me since I found it. It would have been really helpful, but maybe a bit scary, to have found it before my ostomy, but that's water under the bridge. But I got thinking about it, and now I'm questioning why doctors and hospitals don't provide this site's contact info to any patient even considering an ostomy today. And how can we change that so potential ostomates can learn about the road ahead for them by getting on here and asking questions before the docs go chop-chop. How exactly do you get all hospitals to provide their patients specific information, like this website?
I just happened to find this site something like 4 years after my ostomy when I Googled "ostomy forum" or something like that. But I never found it during previous searches.....so I found this site pretty much by pure luck. We need to find a way to make this site available to new or soon-to-be ostomates......as that's when we really need to commiserate with fellow ostomates. Anybody have any thoughts on how we do this?
Thanks,
Bob